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Tuesday, November 06, 2007

Make A Wish!

On Monday Lewis had his wish come true thanks to the Make A Wish Foundation (http://www.make-a-wish.org.uk/) and Heaven at Home (http://www.heavenathome.co.uk/outdoor-hot-tubs.htm). As part of Lewis' (and our) very special day, we were whisked away in a limousine to TGI Fridays in Sheffield for a gorgeous lunch. Lewis' carer from Bluebell Wood Childrens Hospice came along with us as she has done so much for Lewis over the past 10 months and has become very special to us. While we were enjoying ourselves in TGIs, the hard work was going on at home. Sandy and Dave (Make A Wish) were helping out Phil (not Tony!!) and Christine and co (Heaven at Home) to get everything ready for Lew while we were away! And what a wonderful surprise for Lew when we arrived home to see that he had his very own hydrotherapy spa pool in our back garden for him to use whenever he wants! Lewis benefits greatly from hydrotherapy. Not only is the water good for relaxing his muscles and supporting his body, but being in the water is something that Lewis CAN DO FOR HIMSELF. He isnt watching someone else, he isnt relying on someone else to entertain him. Of course we have to support him in the water, but he's in it, he's doing it, and you can see on his face HE LOVES IT! He has been poorly the past 10 days or so so wasnt too sprightly in the pool on Make A Wish Day, but we will keep you updated with photos of him in the pool once he is well enough to get in and enjoy it properly!
So thank you very very very very much to Make A Wish and to Heaven at Home for making Monday 5th November 2007 such a very very special day! And with Lew's new spa pool, many many happy days to come too!
The Yorkshire Post newspaper did an article on Lew's very special Make A Wish Day - http://www.yorkshirepost.co.uk/news/Hot-tub-helps-child-cope.3446938.jp.
Please remember, The Make A Wish Foundation is a charity so if you would like to help by making a donation or by doing your very own Make A Wish fundraising, please do go to the website for more information - http://www.make-a-wish.org.uk/
I have also added some new (old) videos to YouTube. They were very difficult to upload as watching them was incredibly upsetting for us. But we hope it will show you how much Lewis has lost in the past 10-12 months and how easily things in our life that are precious can be taken away http://www.youtube.com/SmnthJeynes.

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Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!