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Saturday, November 10, 2007

Lewis not well

Hello, just a quick hello to say Lewis isnt well. After 3 visits in one week to the assessment unit at the hospital as I knew there was something not right with Lew, we saw his paediatrician for his regular check up and were told Lew has a bad chest, and he now has two inhalers. Ventolin to help open his airways to help him to breath better and a steroid inhaler, not sure what this does but he's got to have it for at least 3 months. Since starting the inhalers, Lew's chest has got worse. Now perhaps without the inhalers his chest would have been MUCH worse, I dont know. But if he continues to cough, choke and wheeze the way he has done today, we will be back at the assessment unit tomorrow!!! Despite Lew being ill, he has been very happy to see his Aunty Nicola, Uncle Lee and especially his cousin Evie whom he adores! We also had a very special night last night (Friday) at the fashion show which was arranged almost single-handedly by our now very good friend Alison Firbank, and towards the end by her 'accomplice' George! I will add photos and more details about the night when Lewis is feeling better and I can concentrate more. Please do leave your comments. The comments space is looking very empty!

12 comments:

Anonymous said...

Hi there, sorry to hear Lew isn't doing good. It's such a worry for you and you all must be so tired. Give him hugs from us all! And kisses. I am emailing you now! LOVE YOU ALL.

Yolanda

Anonymous said...

Hey Sam,

Sending lots of love and kisses to you, this is such a horrible time of year and our boys are unfortunately very vunerable!!!

Take each day as it comes and heres hoping Lew gets some releif soon honey.

Love ya lots

Caz xxxxx

Anonymous said...

Aaaaww no, poor lew...and poor you guys - Hope things are improving for lew today.. thinking of u all, lawse!

The Pettifers said...

Hello Y'All

So sorry Lew isn't good at the moment - I think the winters are going to be a bit of a trial for you...perhaps you should move to warmer climes! Plenty of room for you all here as always.

Thinking of you - lots of love, hugs and kisses,

Woo and the Gang xxxx

Anonymous said...

Hi,
Hope Lew is feeling better today.
Just a comment to say how I enjoyed friday night also, and hope you raised loads.
My daughter is Ellie the 11 year old girl who sang a couple of songs, and I would just like to pass on how proud she felt to be there, and hopes she added to a successful and enjoyable evening.
Take Care
Chris Hughes (Ellies Dad)
christianh@blueyonder.co.uk

Anonymous said...

Sending more hugs and love to Lew as he's in hospital. Not sure when you will get this but you will know we were thinking of you. Praying he will beat this pneumonia ASAP.

Anonymous said...

(((((((((()))))))) For Lewis and hoping he feels better soon xx

Anonymous said...

anyone heard how lewis is today at all?

Anonymous said...

I heard from Sam this morning and Lew's stats were still low but his breathing doing much better. Apparently he was laughing at the telly last night :) Hope he comes out soon and gets over this asap.

Yolanda

mattydj said...

Hi, I was very proud to be at the Holiday Inn last Friday taking part in your special evening. It was a pleasure to see all those people from all walks of life giving up their time to raise money and support you all. Come the end, I was absolutely exhausted, but the look on Lewis's face as we played Save All Your Kisses For Me made my night.
Sorry to hear he's not too good, hope things go OK.
With best wishes,
Matthew Western
Your Friday night DJ

Anonymous said...

hello its us in hospital. cant log into website to update. lew is up and down and confusing everyone - he is a mystery!

his oxygen levels have improved slightly today and he is looking alot less pasty.

possibly home friday

thanks for comments, texts and visitors xxxx

love samantha and lew

ps i will reply to comments personally when we are home

Cheryl said...

Hi Sam and Lewis,

Was nice to see you both today and lewis looked alot better. Hope he continues to improve and your home for the weekend.

cheryl xxx

PS. Did lewis finally go to the toilet? lol

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!