Lewis Jeynes

Tuesday, July 06, 2010

Local newspaper

Lewis and Mummy and Tina will be in the Doncaster Star tomorrow (Wednesday 7th July 2010) so please do buy it if you can and look out for us!

Tuesday, June 29, 2010

Just a quick hello and a quick update. Lewis remains on his antibiotics and so far (fingers crossed) his head control has continued to improve and he is well and enjoying the sunshine-ey weather. Lewis continues to enjoy school although he is looking forward to the school holidays as he will be going to Blackpool with Daddy and Granny and Grandad!

Lewis recently spent a very special weekend with Daddy, as his aunty and cousins were visiting from Australia so it was a big Jeynes family get together which Lewis loved!

Please do continue to follow Lewis on Postpals and on Facebook (search for Lewis Jeynes).

Thank you!

Friday, April 23, 2010

Starting again!

Just a quick message to let you all know that today we have re-started Lewis on his therapeutic antibiotic treatment so we hope to see similar improvements to last year but this time without the increased seizures please!

Thursday, April 08, 2010

In hospital again :(

Lewis is in hospital again as he is having new movements which are not seizure related but are distressing for Lewis and are exhausting him. He also has a rash which comes and goes which again is distressing him. Doctors are, as usual, clueless as to what could be the problem so at the moment Lew is being observed but we are hoping to get an appointment to see Lewis' infectious diseases consultant soon to see if she has any suggestions for what could be the problem. Very frustrating for us and Lew, but we will not accept that this is 'just one of those thing you have to learn to live with'. We want and need answers!!!

Sunday, March 28, 2010

Special Effect Charity and Lewis

Please take a moment to watch this video clip about the Special Effect Charity and the amazing eye computer they are able to loan out to children like Lewis who can only communicate and interract with their eye movements.

Special Effect http://www.specialeffect.org.uk/ is always striving to raise awareness and of course funds to continue their great work. In July 2010, me and my friend Tina are running in the ASICS British 10k London Run for the Special Effect Charity Team to help to raise more funds for the charity ... I will be posting a link to Just Giving when it is set up, so please please please do sponsor us and please do take a look at the Special Effect website via the link above to find out more about what they do!

Thanks!

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love