Lewis Jeynes's Fan Box

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Friday, November 02, 2007

Short update

Hello, Lewis has been very poorly for over a week now, he had 3 days without any milk due to a stomach bug and now he has a very bad cough which is making him sick again so he's not getting much milk again, and not getting much nutrition is always bad for Lew as he loses weight very quickly which leads to him getting ill very quickly. We've spent the whole week indoors trying to get him better, and we're just hoping he can improve alot for Monday when the Make A Wish Foundation are coming to grant Lewis' very special wish of a hot spa pool for his hydrotherapy. Please do leave your comments or sign our guest book. It makes the miserable days a little brighter. Update 3/11/07 7.30am After a very bad night, we are taking Lewis to the hospital to be assessed as he has had no milk, has been sick several times and his cough is much much worse. Update 3/11/07 7.15pm Well after a couple of hours at the hospital this morning it was decided that Lew should have very small milk feeds every hour to see how he tolerates them. It was easier to do this at home than to stay in the hospital so we've been at home and Lew has been in his bed (in his new room!) and I've been giving him milk every hour in a small amount and (fingers crossed) he has tolerated it really well and is now asleep. His cough did worsen towards the end of today, but he seems to have settled well and hopefully he can get a good night sleep. Thank you to everybody who texted with your kind wishes today, it really does mean alot. Update 4/11/07 10am Lewis is alot better after a reasonable night sleep so we are going to try going out today! Hooray! We were going a bit nutty being stuck indoors! PS Annette - thank you for your guestbook comments - if you have my email address, could you email me? I would email you through the link but I know I'll forget so if you could email me it will remind me! PPS Helen - hello! Samuel's favourite colour ... hmmm well he likes to wear black (being a teenager) but he also likes blue and red and green and most colours really. He's into a game on his xbox at the moment which is about an alien (its called Halo) and I think his alien is blue!

6 comments:

brenda said...

Oh dear so sorry to hear that Lewis is so unwell and sorry not to have commented earlier. Hope the sun is shining in Doncaster like it is here - beautiful autumn colours and clear blue sky. Take care all of you and our love as always.

Brenda and Ricky

Anonymous said...

Oh little man, we love you so so much. Be big and brave sweetie and lets hope you get better real quickly!!!

LOVE YOU!!

Auntie Caz and ppxx

Anna Mae said...

I've been away so hadn't seen the blog. Glad Lew is on the mend and give him lots of kisses from us xxxxx

Anonymous said...

Yay, glad lew is on the up!

have a great day!

lawse!

Anonymous said...

Hi guys,
glad that Lewis is getting better, give him lots of kisses and hugs from us, we all missed him at Livia`s party.
It was lovely to see Samuel, he was brilliant as usually playing with the little ones!

Hope next week is better for you all x x x

Olya, Illya & Natasha

Anonymous said...

Sorry to hear Lew has been unwell - i'm sure the spa pool will cheer him up no end - can't wait to see the photos! Hope you are all looking forward to his modelling assignment on Fri nite. Can't wait!
Gorgeous photos of Lew at the Best awards. See you soon

Rach et al. xx

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!