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Tuesday, March 20, 2007

What a lovely day!

What a lovely day we have had today! We got up early (7.20am I got up, 8.30am Lew got up) so we werent late for group!!! I exercised (hahaaaa!!), had a shower, etc, and then got Lew up and bathed and dressed and we were almost out of the door at 9am!! Granny surprised us with a very early visit at 8.50am and Lew was a bit confused about what was going on (routine gone to pot a bit) but I think he was pleased to see granny as he hasnt seen her (or grandad!) for ages! We said goodbye to Granny and drove to the hospital and found a parking space, hooray! It was still busy though, we were lucky to get the space we did!!! We went inside and waited in the playgroup room for others to arrive. Marie arrived soon after us, then Cole arrived with his mum, then Todd and Toby arrived with their mum and aunty. At 10am, it was just us! No Chanelle, and no Joseph! But Chanelle and Amanda arrived at quarter past (taxi was late) and Joseph and Jane arrived at nearly half past, so we were almost a full set! Claire arrived from portage to play with Lew, and although he was a bit reluctant to relax at first with lots of people around, eventually he was having a great time!!! The children did some cutting and sticking, and then took turns on the computer. Claire was playing with Lew in his giraffe chair, with stacking pots on his table, and the other children joined in - they were taking it in turns to knock the pot tower over! It was so great to watch, everybody became involved and Lewis had the best time being surrounded by his friends and being able to take part too! At 11.45am we went down to the sensory room which was great!!! Then it was time to come back upstairs and time to finish, but what a great group it was!!! Lots of great photos to share! We went across to Stirling Street for musical minis, met Granny there, and Lew gave her lots of smiles! We had a lovely chat with Alison (Samuel's mum from musical minis). Alison is a born fund-raiser by the sound of it and has done parachute jumps, etc (!) to raise money for worthy causes! Wow! What is totally amazing is that Alison and her group of fund raising friends have asked if they can help to raise money for Lewis' fund (for sensory equipment and other things for Lew and for other children who would benefit from these things) and so we will let you know soon when the first 'event' is so we can all give Alison and her friends some support! Especially at the parachute jump!!!! We came home to the warm - what is with this weather?!!! Freezing wind, snow, sunshine!!! - and watched a bit of TV then Samuel came home and because the internet wasnt working (!!!) Samuel sat with us to watch Cheaper by the Dozen 2 on Sky. James has done really well today on his sponsored slim - he has been nibbling on carrots and celery all day!!! Tomorrow we are presenting our BIG cheque to Ward 31 at DRI (£2000) so better put our best clothes on for that!!! We hope you enjoy the photographs from group this morning - you can see how much everybody enjoys the group - children and parents alike - Jill, Rachel and Lynda make it so very special - thank you ladies!!! And if any mums are interested, we are trying to drum up interest in a mums only pamper day at 'What Women Want' here in Doncaster town centre - its the party package, champagne on arrival, 2 hour pole dancing session (with certificate on completion), lunch, hair and make up and a free pass to Flares nightclub .. whohooooooo! So if you are interested, please do let us know! Its not for fund-raising, but we all need a pamper now and then and I think us 'hospital' mums deserve one for sure!

5 comments:

Anonymous said...

Hi Sam
The pictures of group are lovely. Just one thing though ..... can you airbrush me next time please!! (ha ha)

Jill

Anonymous said...

Hi Sam
I agree with Jill the pics are lovely, but disagree that Jill should be airbrushed! It's a shame you didn't get a picture of her excellent demonstration to us all of pole dancing!! lol
Rachel x

Anonymous said...

HI Samantha!

so good to read all your news and see your pictures! We are now back home and almost unpacked! Hope to see you sometime. Still thinking of you all.

Love as always,
Yolanda

Anonymous said...

I seem to recall Rachel that it was you who did the pole dancing demonstration .....

Anonymous said...

glad you had fun at group. And loved the photos as usual! Good luck with handing the BIG cheque over to Ward 31 at DRI! And well done to James for his sponsored slim!

Take Care
Sian XxxX

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!