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Thursday, March 22, 2007

Miserable

Hello, been a miserable day for me, but not (phew) for Lew! Woke up with an unhappy tummy so couldnt take Lesley for her make-over at Lizzie's salon. Did, however, manage to do my exercises this morning, and upgraded from doing them trying to avoid the bed in the bedroom to going downstairs in the lounge, lots more room, with the curtains shut!! And Lew came down to watch and found it very funny! Diane came at 10.30am and bathed Lew while I showered, then we popped to the Post Office to post a parcel of cloth nappies for my friend Ceinwyn and a book that had been ordered from www.greenmetropolis.com. Said bye to Diane (who had had the best time with Lew, making him laugh and smile loads today!) and popped in to see Roz. Lew stayed with Emma for a little while (Emma is looking good on her diet, well done Emma and keep it up, be positive and focus on your goals!) and Roz and I went to Ilva to look at cheapo furniture. Then Roz had to go and do her motherly duties while I went to see my doctor. You see, I have been worried about my mental condition for a bit now (haha yes I am sure everybody who knows me will say - we've been worried about your mental condition for years!!!). It has been getting me down because I see-saw from being ridiculously happy, almost hysterical, wanting to hug everyone and talk constantly about absolute rubbish, saying inappropriate stuff, laughing at not really that funny stuff, and just being a bit mad, and then feeling so low that I can see no purpose in my life at all. Well the doctor is referring me to a psychiatrist (about time I hear you cry!) for a diagnosis and a medication review so we'll see what happens there. This afternoon (for me) was one of my very low afternoons. I could not face being on my own and I could not face going home so with Lew asleep in the back, I went for a drive around and got lost (haha!) and saw some fantastic houses (somewhere called Moss I believe near Askern) and I texted Classic FM (who we were listening to on the car radio) and they read out our text, cooooool! Which made me smile, cheered me up loads which I really needed so thank you Classic FM! Then we ended up in Bentley so I took Lew to the pet shop to see the rabbit and the hamsters and fish and stuff, then we popped in to Morrisons and then we went to visit Jodie's mum Angela for a cup of tea! When Lew saw Jodie, his face just lit up!!! He loves her so much! It was lovely also for Lew to finally meet Jodie's mum and brother and sister (Courtney and Bradley). We had a good chat and I hope we can become friends as we are almost the same age (okay I'm OLDER than Angela, but only by a couple of years!). Then we came home, Jodie is staying over tonight, got Lew in bed - he was sooooo tired! Had some tea and now we're going to sit down to watch Casino Royale (the new James Bond). So that has been our day. Just want to say belated HAPPY BIRTHDAY to my nieces Millie (who was 3 on 18th March) and Daisy (who was 15 on 20th March) and to my mum who was ... dunno how old!! ... on 16th March and to my almost OLDEST friend Rosalind who was 41 on 18th March! Also, welcome home to Yolanda, Stephen and the children who have just returned from a NTM conference in Germany - jet setters! Baby massage tomorrow, then seeing Philippa (social worker) tomorrow afternoon as couldnt face coming home this afternoon to meet her. James is off work tomorrow to do housey things. No new photos to post, but will get clicking to give you all something to look at! Lots of love to everybody, especially Tilly who has blue lips and Eliza who has a new tooth!

2 comments:

Anonymous said...

just emailed ya.
hope you you have a better day today :)
take care,
lawse!

Anonymous said...

im sorry to hear that you didnt have a good day yesturday. :( hope you had a better day today. Its good to hear Lewis is smiling lots :) im glad your text got read out on radio to! thats so cool!

take care
Sian XxxX - thinking of you all

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!