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Monday, March 19, 2007

Mothers Day

<--- Some of the pics and cards Lew got for his birthday
Well we hope you all had a great mothering sunday yesterday. All those mums who deserve a rest and some pampering probably didnt get much, but then who is mothering sunday for nowadays? The card shops and the supermarkets!!!! Tesco was packed on Saturday with men (and kids in tow) buying flowers and cards and toiletries to give to Mum on Sunday. Total madness. I bought 2 cards from Home Bargains (the BEST shop in Doncaster) for 49p each and gave them to James to get Samuel and Lew to write in! Thats all I needed, thank you very much! What a fabulous day Lew has had today! We got up late (10am whoops should have been at group at 10am!) and so Marie (Bluebell Wood) came to the house to help get us organised so we didnt miss all of the group at DRI! While I ran Lew's bath, Marie when up to get Lew, and I saw on the camera the biggest smile he gave her - it was awesome! And the morning continued full of beaming smiles! Marie gave Lew his bath while I got showered and dressed, and I spotted Lew smiling and laughing at Marie while he was in the bath! We went to group, but as we were late it took me 300 years to find somewhere to park. I ended up on Balmoral Road (about 15 minutes walk from childrens hospital) so we got to group just after 11am! I had a quick cup of tea and a rest, then went to have a cuppa with Karen, Craig and Heather. Lew did some sticking and then went on the computer with Lynda and Marie. He does LOVE that computer!
Me and my Daddy -->
Eden was in a very happy and cheeky mood, it was such a happy group, but Daniel was very very tired as he's just started sharing a room with his older brother and I think they have spent all weekend waking each other up so he was tired and a bit miserable! After group, we went to see Helen and Ernie. It was lovely to see them again, have a lovely cup of tea and a scrummy sarnie (me) while Lew watched CiTV! We had a good old gossip and Lew even sat on Helen's lap without getting upset, while I went to the loo! It worked the first time, but the second time when we were leaving and I wanted to put my shoes on, he had an RAS on Helen's lap and gave her quite a fright! What a mad day for weather, eh? Sunshine, rain, sunshine, snow?!! We popped in to see Denise, Maisie and Oliver on the way home from Helen's and had some more tea!!! More tired children there, but Lew still enjoyed watching them play and he especially enjoyed Maisie making faces at him! Again (all that tea) I needed the toilet again and Lew had an RAS on Denise's lap, but Denise is used to them by now! And Lew was very tired after a busy day. We came home, had a chill on the sofa for a bit then it was time for Lew's bed. And now its time for my bed too so I can make sure I get up early enough tomorrow not to be late for group!!! Have added 3 photos from last week. Me and Marie singing 'Wheels on the Bus' --> I emailed some of you last week about a postpal, Amelia P. Sadly, Amelia passed away on Saturday - please do go to her website and leave your messages for her family at this very difficult time - www.ameliaprice.com and please remember our other postpals who need your letters and cards and emails - www.postpals.co.uk

2 comments:

Anonymous said...

awwwww i love the pics you posted for us to see! Thankyou. Its lovely to hear Lewis is smiling lots.
Hope you had a good mothers day
Take Care
Sian XxxX

Anonymous said...

Glad to hear lews been smiling lots,
and yes very sad news re Ameila - RIP- such a brave little princess :(.
Lawse.

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!