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Friday, September 04, 2009

Some amazing photos of Lew

Sorry its been a while since an update on here. We have been keeping Lewis' facebook fan page up to date as its so much quicker and easier than on here but we really did want to share these amazing photos with everybody who cannot access facebook.
Lewis' head control has improved amazingly since he began on antibiotics around 8 weeks ago. This week I have been practicing Lew's sitting up ability and here are some photos of how well he's doing! Please bear in mind that before he started on the antibiotics, in this position his head would have either fallen backwards with no neck/head control at all, or fallen forward on to his chest. He would not have been able to hold his head up like this at all, and certainly not been able to turn it to the side to look in the mirror on his wardrobe!! Amazing!

3 comments:

Joanne said...

Hi What wonderful news and thanks for sharing these photos.

Lewis clearly has some strength control in his left arm whether he has always had this or not I don't know but if he had none then his arm would be outstretched and it is bent.

When I had problems in my arms with Lyme I would have had difficulty maintaining that postion with left arm.

Whatever his head control is amazing and must help focus your determination with this course of treatment against all the nay sayers in the NHS.

Hopefully some of Lewis' Doctors will take note and put their thinking caps on and look into IDSA review presentations by ILADS doctors.

Anonymous said...

When people ask me what improvements I've seen in myself since I started taking antibiotics some months ago, I sometimes think that my ability to stand up a little more than before must sound so trivial to people who haven't had to live with this. From an outsiders perspective my improvements must look so small but I can really relate to your sentiment of how just being able to hold his own head up is as though he's just reached the top of mount everest.

We have many more mountains to climb, but at least now we're better equipped with the right medication to get us to the top. Thanks for the update- I had been wondering how he's getting on:)

H

lawsey said...

amazing photos.... so happy for you all :)

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!