A glimmer of hope?

Today we have had a few positives, we managed to find out that we can be fast tracked to see the specialist on infectious diseases so we have organised that with our GP, we have seen Lewis’s Doctor in Doncaster who admits its not his specialist field but he will try to support whatever we need to do to help Lewis. As a result of the GP referral we should get a much earlier appointment for Lewis to be seen by the regional expert. If we manage to get to that appointment soon we will be able to assess how soon treatment for Lewis can start, whether that be through the NHS or through a private route. We have our fingers crossed that we can continue on with the NHS but it may be that we have to look at a combination of the two managing Lewis’s treatment and other medical issues. Lewis’s granddad is trying to make an appointment to see an American specialist while he is the USA visiting his brother (get well soon Great Uncle George) and it may be that we decide that the best option for Lewis to aid his recovery is eventually for us to travel to one of the better known clinics over there for examination and possible new treatment regimes.

All in all at the moment we are feeling a bit more positive than yesterday when we heard that the appointment would be months away ...

Lewis himself is very bright and energetic with his new feeding schedule and he is putting on weight which is really good news, with the possibility of treatment and maybe recovery ahead he needs every calorie he can get.

Thank you to all those who are keeping up with Lewis’s website, the emails are really helpful, sorry we can’t always reply as you can imagine we are pretty overwhelmed by the possibility that we can help Lewis recover and that is taking up alot of our time!