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Tuesday, March 03, 2009

Lewis - Lyme Disease

We today had the results back for the tests for Lyme Disease - these came back negative - Lewis does not have Lyme Disease. Thank you to everybody who encouraged us to pursue this - it is better to know than to wonder.

4 comments:

Angela said...

We are all so gutted down here as we had so much hope pinned on these tests for you all.

Penblwydd Hapus little soldier - we are glad you had a fantastic day with your mam and dad.

Love to you all from Angela, Len and Girls

Kerry & Co said...

Aw No! So sorry these results didn't turn out as we ALL hoped they would. Hopefully it has put you onto another path to follow in the search for some answers.
Big Kisses to Lew
Love from The Ortons xx

Post Pals said...

Hello, I'm sorry to hear the results were negative, i was so hoping there would be an answer to what lewis had and that it was treatable.

I'm also sorry for missing Lewis' birthday but I've not been well. I did think of him on his big day, I can't believe he is 5, he is growing up fast!

Lots of love

Viks

LeRoy said...

You don't give specific info about the test - which lab, which type of test, which bands score what.

Please, PLEASE, for the sake of this child, do some research on Lyme Disease. The tests are notoriously poor, and MANY people get negative results, yet still DO have Lyme. PLEASE look into this more, and give more detailed info here.

I know how bad Lyme makes me feel. I can not even imagine a child -- too young to know how one is supposed to feel, and unable to adequately express what they do feel. PLEASE, something prompted you to run that test to begin with. Please consult with a lyme-literate medical doctor.

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!