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Monday, July 09, 2007

Some photos from the past couple of weeks

Enjoy the photos - they are out of order (the latest ones are first, the older ones are at the bottom!) but I'm too tired to sort them out!!! This a pic of Lew yesterday afternoon in the assessment unit at DRI
This is from Tuesday 3rd July when Lew had his orthoptic appointment This is from last night when Lew had his second seizure and I thought we might have to phone another ambulance. You can see his mouth is twisted slightly and his eyes are staring - he was unconscious and seizuring but thank goodness it only lasted 2 minutes. This was Oliver finding a new way to play his game!
This is Maisie preparing for Royal Ascot or Ladies Day at the St Leger Festival!
This is Lew in bed with his splints
There were quite a few geese on the lake the other day! This is Lew today (9th July) with is new head support which Anna (Nathan's mum) very kindly sent us in the post. It stops Lews head from flopping forward in the car. It doesnt look great, but it works and that is what matters!
This is Lew in bed this morning with his second gift from Anna and Nathan - a cheeky monkey!
On Thursday Lew got a surprise present from his other friend Declan which was a glow monkey and some super cool Bob the Builder pyjamas!!!
Lew fell asleep on Mandy in Fundays on Wednesday afternoon!
Before Lew fell asleep on Mandy he had great fun playing with Marie in the ball pool! No wonder he fell asleep!
On Tuesday afternoon Kath and Janette came from physio to fit Lew into his monkey stander again as he has grown 2 inches in the last 2 months!
Lew was alot happier about being in the stander when he was allowed to watch The Chuckle Brothers!
On 30th June we went to a fantastic Fun Day at New Tribes Mission near Grimsby. Despite the miserable rain, everybody had a fantastic time, lots of delicious food, cakes, face painting, caricatures, bouncy castle, activities, and of course we got to spend the day with Yolanda, Stephen, Naomi, Joshua and Joel!
Thursday 28th June was (yes I admit it) my Birthday. We had a lovely day with Yolanda and family in Grimsby but I was very sneaky and didnt let Yolanda know it was my birthday!!!
Yolanda, Stephen, Naomi, Joshua and Joel made an incredibly generous donation to the Lewis Jeynes Fund - thank guys, you know we love you and it is so great that we are able to see each other a bit more nowadays - we're okay in the summer - its the winter (coughs, colds, snow) that keeps us apart lol!
On Sunday 24th June, James, Lewis and I went to Normanby Country Park. It rained rained rained, but we're English - we are used to it haha!
So I hope you enjoyed the photos.
Lew didnt get much sleep last night (he had a second seizure at 10.25pm but it only lasted 2 minutes thank goodness). Today we did a few jobs around (dropping off wee sample at hospital, picking up prescription for epilepsy medicines from doctors, picking up medicines from chemist) and then Lew went to bed at 6pm. He did have another seizure this afternoon just after 4pm which lasted for 4 minutes, so still not quite the magic 5 minutes which means rescue medication and possible ambulance.
I do want to say thank you so much to the nurses at the Doncaster Royal Infirmary Childrens Assessment Unit (CAU/PAU) who were great with Lew (as usual) and really looked after us.

3 comments:

Anonymous said...

Fabby pictures - I love the one of Lewis at the bottom of the slide in the ball pool

Have a good week,

take care,

lawsey

Anonymous said...

I love the photos! bless :)
hope everything is Ok too.

I send my love to all of you and will be looking out for you all in the newspaper tommorow! Cant wait lol

Love Sian XoXoX

Anonymous said...

As a grandma bringing up our gorgeous granddaughter who is very much like Lewis I am so concerned that amost weekly I hear of another child that has no diagnosis - what is happening to the children - why isn't more being done for children like ours - I feel becuse the medical teams cannot immediately recognise a syndrome we are sent away and more or less told we have to live with it. If only doctors could feel what it is like not knowing how long we have our preccious children for - everytime our little one is ill we are petrified that 'this is it'

There are now so many undiagnosed children why isn't research being done to find the cause.

You will be in my prayers tonight Lewis God Bless XXX

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!