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Sunday, July 08, 2007

Hospital

We have been in hospital again today. Lew has had major secretions and then this afternoon he had a big seizure requiring rescue medication which supressed his breathing slightly and combined with the secretions, he was very poorly so I took him to the assessment unit at the hospital. He was put on oxygen for a bit and his levels went up. We left the assessment unit around 9.30pm. Lew is in bed now (my bed, got to keep a close eye on him) and just after 10pm he had another seizure but only a small one (2 minutes) but it did prompt me to ring the hospital and check what I should do if he has another big one tonight - we are to ring an ambulance straight away and get him in. I have packed our overnight bag just in case and now cant sleep as so hyped up and on edge. Arrrghhhh! I just hope he's okay for surgery next Monday.

3 comments:

Anonymous said...

Hey handsome dude,

Really pleased that you got to come home little man were thinking of you lots here in Luton, Keeping everything crossed for next week so that everything goes smoothly.

Sending lots of love and kisses your way all our love Caroline and Deccy xoxoxoxoxoxoxoxoxoxoxoxoxoxo

Anonymous said...

awww poor Lew :( hope hes Ok. Still thinking of you all lots and lots and lots.

Take Care
Hope your post I sent yesturday arrives very soon

Sian XoXoX

Anonymous said...

Aaaaw no, poor Lew (& poor you)

Hope lewis was ok for the rest of the night although i imagine you weren't able to get any sleep due to worry :(

Hopefully *crosses fingers* he'l be ok for Monday,

and i hope Lewis has a seizure free week now..

thinking of you all,

take care

Lawsey x

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!