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Wednesday, March 28, 2007

The ULTIMATE facial!!!

Well what a wonderful couple of days.
First of all Tuesday. Got up really early on Tuesday morning so we were at the hospital very early! Took the tyre back to the garage first though! Kath and Janette tried Lew in the monkey stander again, but he was sooo tired he didnt do quite so well in it, but we are 99% sure it was because he was so tired from all the effort he put in on Monday and that the more he uses it, the stronger he will become - fingers crossed anyway! Just have to get hold of a monkey stander for home now!! The waiting list for getting one through the hospital is long so we are hoping we can get some money donated very quickly so that we can order one soon, as they take around 4 weeks to be delivered from the manufacturer.
At group, we made MORE chocolate crispie cakes yummy! We tried to light candles off the electric cooker ... why? Well, Rachel who runs the group with Jill and Lynda - she is having a birthday in April, but as this Tuesday was the last group before the Easter holidays, Jill got her a cake so we could help her celebrate a little bit early. I wont divulge how old Rachel will be, but let me tell you, she doesnt look her age!!! So we not only had chocolate crispie cakes, but also CHOCOLATE CAKE yummmmm! It was gorgeous! We did try very hard to surprise Rachel but she's soooooooooooo nosey (!!!) that she kept popping into the kitchen and we think she spotted the cake! We missed Cole in group on Tuesday, so a big hello to Cole and his mum from all at Tuesday group and hope to see you at the farm. Which reminds me, Jane (Joseph's mum) left her memo about the farm visit at group AGAIN - is she trying to tell us something? Haha!
The children had a wonderful morning (see photos) and we finished off the morning with a lovely relax in the sensory room!
Tuesday afternoon we went to musical minis and had a great time. We got some news from Sam's mum about her parachute jump! She is making the arrangements and should be able to do it at Sandtoft - and I found out she's afraid of heights! How brave is that?!!! To do a parachute jump when you are afraid of heights - well I know I couldnt do it so thank you SO MUCH Alison! And we will all be there to watch you!
What a GORGEOUS afternoon it turned out to be! So Lew and I sat in the garden and watched Samuel bouncing super high on the trampoline!! It was lovely!
James was away in London last night for his boss (David's) 50th (I think!) birthday meal! So belated HAPPY BIRTHDAY David and hope to see you soon.
Lew was in bed (absolutely shattered!) by 6.30pm and I had a bath and went to bed as well at 8.30pm!!!
So here we are at Wednesday! Well we had a bit of a lie in, got up at 9.30am and arrived at Lizzie's to meet Jayne and to have my 'treat' for the month. We met Lizzie's mum and it turns out that Lizzie and her sister went to the school where our neighbour Pat was a teacher! Small world! I had my waxing done and then I had the MOST AMAZING facial ever! You must must have one!!! Lizzie is absolutely the best therapist I have ever been to and the Elemis facial she did was totally awesome! It lasts 1 and a quarter hours and is just mind blowing! So if you want Lizzie's number, let me know!!! Jayne and Lew played in Lizzie's lounge while I was chilling!! Then Jayne finished her 'shift' and Lizzie, Mavrick, Lewis and I went to the Yorkshire Outlet (Lakeside Village for posh people) and had a wander round the shops in the sunshine.
We had some nosh in Cafe Ritazza then Mavrick had a snooze in his pushchair and didnt wake up even after we had gone back to the car and I had dropped him and Lizzie back off home!!!
Lew and I drove back home and watched some Baby TV (a fab baby channel on Sky that is like Baby Mozart but FREE!) then James came home and Lew had a big cuddle with his daddy!
Lew went to bed at 6.30pm, straight to sleep again! I did my exercises (wahey!) and had a VERY healthy tea (as suggested by Lizzie) and soon I'm going in the bath then going to bed!
Enjoy the photos and I'll try and catch up again tomorrow - but seeing our neurologist tomorrow - Dr Mordekar - so might not be in the mood! Not a 'big' appointment, just a check up (not like the one at Great Ormond Street at the end of next month - very scared about that) but still stressful.
Love to everybody xxxx

2 comments:

Anonymous said...

Wow you have such a busy life! But it's great that Lew has been doing so well and getting to see lots of people which I know he loves doing! Will be praying about your appointment tomorrow and also the Big One next month at GOSH. Seems like you have been waiting forever for it. Thinking of you all.

love,
Yolanda

Lucy said...

Hi I love Elemis facials, I can almost feel how smooooooth your skin is from here!

How much do we need to raise for the monkey stander? (Email and let me know)

Lots of love

L xxxx

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!