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Monday, March 26, 2007

Cardiff

Hello! Well what a lovely surprise to have a visit from my friend from Cardiff ... well near Cardiff anyway! Angela comes from Rhondda Cy non Taff (I think thats how you spell it) and we met on our honeymoon (mine and James' honeymoon, not mine and Angela's!). Anyway, that was this evening - Lew and I have had a very busy day until that point! I got a picture of Angela and I together, but in every one of the ones I took, one or the other of us looked rough so SORRY ANGELA but my camera, so I chose the photo hahaaaa! PS. if any Donny fans are going to the game on Saturday, Angela does some work at the Millenium Stadium as a steward so dont forget to say HELLO! I got up early enough to fit in my 30 minute exercises (whohoooo definitely getting into the swing of it now!), got showered, then got Lew up and bathed. We got dressed, and drove to DRI for playgroup. We were chatting to the lovely volunteer ladies at the front desk when Marie came along so we walked down to the childrens hospital to wait for group to start. Daniel and Eden arrived, and Lew was very happy to see them. It was very exciting for us as well as Kath (physio) wanted to try Lew in a standing frame and it was soooooooooooo cool (see photos). It was a surprise to see how tall Lewis is!!! He hasnt been in a proper standing position since last April!! It was so awesome to see him in the stander and he really enjoyed it too! He did so well with supporting his head although it was very hard work for him. He was okay at lifting his head from leaning forward, but he had to be careful that he didnt let his head go too far back as he lost control then and was not strong enough to bring his head back to upright from that position, but he tried sooooooooooo hard! And also, he tried so hard to look to his left and right, it was totally amazing to watch!
Making rice krispie cakes ...As Lew was trying out the stander, I stayed in group for most of the morning, but managed to pop out for half an hour when Lew was too tired for the stander anymore and went back in his giraffe chair - monkey stander, giraffe chair ... cool names! After group Karen and Craig came to have a look at the new car as they have ordered a Renault Grand Scenic on Motability as well and they are due to collect it some time this week, so I was showing them all the cool bits of the car and they are very excited!! It was the last Monday group for a few months as Eden and Daniel have 'grown out of' the group now. They have both come on so well and are ready for regular nursery/school. So it was sad as well, but we will all keep in touch! I told Rachel and Jill that they should keep the Monday group running even though its just Lew, but boo hoo its not to be!! I'll have to keep working on them! As usual, Rachel and Jill had been very busy with the children's artwork and had made easter cards for us as well as lots of lovely pictures the children had done, a cool mobile to hang from the ceiling, and a very cute mirror! We said goodbye to Karen and Craig and drove to Roz's briefly and then Roz came with us to go to the Renault garage to collect our wheel with the damaged tyre (Retford ... nail ... puncture ... remember?!) and then to take that to Kwikfit for replacing. The man in Kwikfit was really helpful and took the tyre and my mobile number so we could come back when it was ready. So we drove back to Roz's then walked into town because it was such a beautiful warm sunny afternoon! We went in Home Bargains (yay best shop!) then walked back home again to collect the car and go and get the tyre!!! So thank you Kwikfit for the fab service - they even put my old wheel (with new tyre) back on so now I have to return the other wheel to the Renault garage so they can put it back on the car they 'borrowed' it off lol! I'll do that tomorrow after group. We went back to Roz's for a nice cup of tea and watched a holiday video from earlier this year when Roz and family went to Broncemar Beach in Fuerteventura. Lew had a great time watching Roz being attacked (as usual) by her killer chihuahuas (see photos!!).
Roz and Lew look incredibly bored!!! Then we went to the train station to collect Angela, came home for some tea and a chat, and James has just dropped Angela back off at the train station so she can get back to her hotel in Leeds ready for her meeting tomorrow morning. Its 11pm - very late for me! So I'm off to bed now! Hope you enjoy the great pics!

1 comment:

Anonymous said...

hi, yep they are great pics. love the ones at group. Sounds like Lewis did really well with the monkey stander - love the names! lol. and you are doing well with your excersies (would help if i could spell, lol) Hope u had fun with your friend from Cardiff - liking the pic of u and your friend

Take care
Sian XxxX

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!