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Wednesday, December 06, 2006

Wednesday

Well its a lovely (not!) sunny (not) rainy (yes!) morning here in Doncaster. What is wrong with Doncaster? Why do au pairs only want to go to London? Dont they realise how horrid and smelly and dirty London is? And how beautiful and green and clean and friendly Doncaster is? Hmmmm? We had an au pair all lined up to start on 8th January and then yesterday evening she emailed to say she had found a different family in bladdy LONDON ... grrrrrr! So we are back to square one! Back to searching for an au pair who wants to come and live in the grim and grimy north! In fact, I have now recruited the wonderful aunty Wendy to write a profile for us on aupairworld.net in the hope that the offers will pour in! Its a shame its not male au pairs ... we could post photos of naked women instead haha! Well Lewis is sat next to me on the sofa eating croissant. Evie is sat on the other side of me relaxing watching Noddy on cbeebies. What a fab channel cbeebies is ... NO ADVERTS!!! Nicola and my mum are in the kitchen chatting while mum makes me a lovely cup of coffee (3 spoonfuls of coffee please, I like it strong!). Lew slept well last night until around 8am this morning when he was having trouble breathing and kept coughing. He has so much phlegm on his chest, because he can hardly move, so its a bit like someone suffering from cystic fibrosis - I will need to talk to physio about giving him some of that massage where they slap the back really hard to dislodge the mucus ... such a lovely subject for breakfast time!! Havent heard from my oldest son since he left on Sunday to go to London! I assume he is having a good time!!! I havent heard otherwise and I havent had any screaming phone calls from Tania begging me to remove him from her lovely home!! Today Lew's bath lift is being delivered, very exciting! And Jessica (our occupational therapy lady) is coming tomorrow to fit it for us. Lew's chair still hasnt arrived!!! Oh did I mention we have our christmas tree up and its like santa's grotto in our lounge now? In fact, its so like christmas, its great! We are all having a very christmassy week!

1 comment:

laura said...

Yay @ your Xmas tree being up.

mum wont let ours go up til the weekend before xmas.. Spoit sport haha :P

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!