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Tuesday, December 05, 2006

Family

James and I are lucky to have wonderful families. First of all our two wonderful sons. Samuel is 13 (nearly 14) and has been a joy and will I am sure continue to be so! He is reaching that kevin and perry teenager stage, but even so he's lovely, even if he sometimes makes me cross!!! But we love each other sooooo much and we always have a big cuddle. Samuel is having a bit of a hard time with things at the moment as Lewis is taking up most of our time, but I think Samuel knows how much we love him even though we're not here for him as much as we'd like to be. Samuel has some fabulous websites and is amazing at animations!! I will get some links from him when he arrives back from his Aunty Tania's house! Samuel has severe haemophilia A (just like his Uncle Jason!). He manages quite well, he does his own treatment but sometimes he likes to have a rest so I do it for him! Lewis is nearly 3 and is the most scrumptious happy chap you could ever meet! You can read more about him elsewhere in this blog. James mum and dad, Marion and Colin, have supported us through so much these last few months. They have given their time and effort and support to us and helped us through some hard times. And of course they are ADORED by their grandson Lewis and Samuel thinks they are pretty cool too! Wendy is the most wonderful sister (in law) and even with her own very busy life (involving the decision to emigrate to Australia with the family) she has still had time for us and has provided us with unlimited support and love. Wendy recently came to stay with us with our gorgeous niece and nephew Anna and George. Lewis and Samuel very much enjoyed having them around and it was great to get a hot meal inside us every night, a la Aunty Wendy! Lucy and Mike have been very generous with their kind words and support and we had a lovely surprise visit from Leamington Spa one Sunday afternoon. We all went for sunday lunch together and spent a fabulous afternoon in a local pub/restaurant enjoying good food and great company! My dad Les, has just been great! He came up at a minutes notice when I really needed him, even though he had to put his cat in the vet to be cared for while he was away. He sends me texts often which usually make me laugh, especially as he sends them up to 10 times because he doesnt think the first one has gone so he keeps pressing the send button! When my dad was up here last time, I fed him chicken jalfrezi and garlic naan - my dad doesnt like foreign food and wont eat garlic ... hahaaaaaaaaaaaaaa! He loved it! My mum has found this all very difficult, but we are lucky that she has come to visit us this week, stowing away in Nicola and Lee's car! Lewis has loved having his nanny around, especially as she came to nursery with us today for a couple of hours and spent some time with Lew and the other children making play dough shapes! My sister Nicola and her wonderful husband Lee and their most scrumptious daughter Evie! Lew LOVES Evie to pieces and so does Samuel! She is just the cutest, she is so bright and clever and we feel so lucky to have been able to spend this last week with her and her mum. Nicola is a fab mum and Lee is a fab dad, so its no wonder Evie is such a top girlie! My sister Tania (the baby of the family!) and her partner Nathan, and her gorgeous daughters(my nieces) Daisy and Millie. We have kept in touch with texts and emails and phone calls and I hope to see them soon although with it being so close to Christmas I expect it will be next year now! Only 3 weeks until christmas after all! Daisy has been very supportive to Samuel, as he has not been getting much care and attention while Lewis has been so ill. They speak almost every evening on msn and are very close indeed. Samuel adores Daisy and I hope they will continue to remain such good friends now and into the future. My brother Jason (who inspired me to start this blog) is quite possibly one of the nicest men most people would ever meet. He doesnt seem nice all the time (I hear he can be quite grumpy!) but deep down where it matters, he's a gem so its no wonder everybody loves him! Check out his blog (see my links) - the Mighty 'C'.

2 comments:

Jason Paul Tolmie said...

I'm not grumpy! What ya talking about!
I'm going now!
I'm going off..........in a grump!

Nah, not really;) But Manf is right, I can be grumpy & quite quiet and withdrawn at times and think it must be my way of dealing with all my little bits & bobs life is throwing at me;) And god knows what my drugs are making me feel like! I have been on the things since 87. I don't know normal anymore;)

I like the photo of us and Nic on the blanket:) I am going to try and make it look a bit better on Photoshop and write a post on my blog all about it and how I feel sad when I look at old photos like that.

Jasonxxx

Smnth & Co said...

I feel sad about them too Jae, especially cos we were sooooooooo sweet then and POOR haha!

It always makes me laugh when I think how poor we were financially, but if love and happiness were money, we'd have been the richest in Twickenham!

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!