Lewis Jeynes: UPDATE

Tuesday, May 26, 2009

UPDATE

Lewis' dad has spoken to the doctors. Lewis definitely does have chronic Lyme Disease. He should be started immediately on a course of IV antibiotics (this could be 2-3 years treatment) which will involve a drip for around 2 hours a day so he will have to have a port-a-cath fitted. As he starts to improve (we hope!) he will need rehabilitative physiotherapy. Its all VERY exciting!

2 comments:

Anonymous said...: How wonderful to have a path forward!!! :O)
Hopefully the treatment can start asap :O)
You must all be very excited!!!
Best Wishes to you all,
Jessica
(Postpals); 26 May 2009 at 18:36
Lucy said...: Just got back from holiday. This news is the best present I ever could have had for my birthday! Lots of love Lucy xxx; 30 May 2009 at 21:24

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The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love