Lewis Jeynes's Fan Box
Lewis Jeynes on Facebook
Wednesday, May 27, 2009
Update
We are still waiting to hear from Lewis' paediatrician about when he can start the antibiotics. We hope to get something sorted very soon. Obviously every day we are waiting is a day too long. Lew has been ill for long enough and its very important to us that we get him on the road to recovery as soon as possible.
Of course there are worries. My main worry is that Lewis has contracted Lyme Disease since he got ill and that he still has his underlying mystery illness, and that the Lyme is something extra on top. I am hoping with all my heart that this is not the case, and that Lewis' condition was caused by Lyme and that it can be reversed with the antibiotics and the intensive physio. We have also read that Lyme responds well to alternative therapies such as accupuncture, so we will look into this as well as time goes by.
Thank you to everybody for your lovely messages. We are very excited, very hopeful, but also very scared!
Subscribe to:
Post Comments (Atom)
Catch up on old posts HERE!
- December 2006 (17)
- January 2007 (18)
- February 2007 (18)
- March 2007 (17)
- April 2007 (7)
- May 2007 (13)
- June 2007 (7)
- July 2007 (8)
- August 2007 (4)
- September 2007 (3)
- October 2007 (4)
- November 2007 (9)
- December 2007 (4)
- January 2008 (4)
- February 2008 (5)
- March 2008 (3)
- April 2008 (4)
- May 2008 (2)
- June 2008 (3)
- July 2008 (1)
- September 2008 (1)
- November 2008 (3)
- December 2008 (3)
- January 2009 (1)
- February 2009 (3)
- March 2009 (4)
- April 2009 (4)
- May 2009 (5)
- June 2009 (7)
- September 2009 (4)
- October 2009 (2)
- November 2009 (1)
- December 2009 (4)
- January 2010 (2)
- March 2010 (3)
- April 2010 (2)
- June 2010 (1)
- July 2010 (1)
- September 2010 (1)
- October 2010 (1)
Take a look at other videos of Lewis at YouTube
The Lewis Jeynes Fund
The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.
Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.
Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.
Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.
Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.
Useful links
- Post Pals - great site for helping poorly children smile
- Bluebell Wood Childrens Hospice
- The Mighty 'C' - my brother's amazing blog
- Kirsty A - a very special lady
- Nathan Bovell - scrumptious dude!
- Declan Kelly - gorgeous boy!
- Parents of Kids with Epilepsy
- My fantastic photographer friend
- Samara's video - please please watch
- Natalie Robinson - Lewis' LURV!
22nd October 2005
April 2006
August 2006
September 2006
October 2006
October 2006
30th November 2006
30 November 2006
1st December 2006
7th December 2006
7th December 2006
7th December 2006
7th December 2006
December 2006
i love you much (most beautiful darling) by e.e.cummings
i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love
1 comment:
excellent news and i am sure that it will all work out fine!! fingers and toes crossed for ya!!! i really hope that it all works out fine and that lew makes a recovery although i know it will take alot of time!
Post a Comment