Baby massage!

Hello! Well yesterday was a very very busy day! We had a bit of a lie in which was lovely! Then we went to hospital for our first appointment which was with Dr Mordekar. It was a very positive meeting, and we laughed alot. Dr Mordekar was telling us that people who know Lewis (who work in the NHS) will see Dr Mordekar and he knows what they will say ... 'have you found out what is wrong with Lewis?' and he says before they even ask 'NOO! I still dont know what is wrong with Lewis!'!! More test results came back and they are all NORMAL!!! Dr Mordekar said its great that the results are normal but if the people who are reporting the results to him could see Lewis, they would see that Lewis is not normal!! He also mentioned that we should be on Professor Surtees' cancellation list at GOSH so fingers crossed we can get in before April. Then we went to the Renault garage and ordered a new car! Now dont think that because we ordered a new car that we must have won the lottery!!! From 28th February Lewis will be entitled to Disability Living Allowance - mobility component. If you dont already know, I'll explain. With the mobility component, you can, instead of having the benefit as money each month, have a new car for three years. So the benefit is paid direct to a charity called Motability who provide the car, pay the insurance and tax, and maintain the vehicle, and we get a reliable (hopefully!) brand new car! So we ordered a Renault grand scenic in eclipse (the colour) which is a kind of greyish black colour. It should be ready for us to collect mid March. So thats exciting! We had a visit from Roz and a nice cup of tea at home before going back to the hospital for our other two appointments! First we saw Dr Ahmad (Lewis' paediatric consultant) and then we saw Zoe (Lewis' dietician). Both of those meetings went really well, and again we felt very positive and upbeat. We also managed to pop in and visit Ilya who was looking very well to say he'd just had his tonsils out! I do hope Olga managed to sleep well last night in the hospital and that her and Ilya can come home today for some rest!! We arrived home quite late (5.40pm) and Lewis was soooo tired from his busy day that he went straight to bed!!! Margaret from SENCO popped in briefly to lend us a mathmos projector lamp which is fantastic. I put it on for Lewis this morning on the ceiling above the bed and he was mesmerised! So thank you so much AGAIN Margaret! This morning we had a mad rush to get to baby massage for 10.30am! And it was the best! Lew was, as expected, the oldest child there. They were mostly teensy babies! But he loved it anyway and it was great for me and him to do something together like that. We both really enjoyed it. Lew loved looking round at the babies and we also met a lady and her little girl who we had seen many times at Ward 31 when we were staying in. She had stayed in alot longer than us, her little girl is not very well at all, but thankfully she is out of hospital at the moment and so we were able to have a nice chat. As her English is not very good, she is Chinese, our conversation was difficult, but we managed! But any assistance with the Chinese language would come in very handy for next week! Also, she showed me some traditional Chinese massage for Lewis which she does on her own little girl. Like Lewis, her little girl has a silk tube down her nose, but unlike Lewis, her tube does go down to her bowel which she had to go to Sheffield for. We are looking forward to seeing her again next week. Lew and I came home so I could have some lunch while Lew watched some Pocoyo that I had recorded for him, and we are shortly going to visit Denise, Oliver and Maisie! Thank crunchie its Friday! Lewis and I are going to the theatre tomorrow to see The Lion, The Witch and The Wardrobe! PS. Thank you Mel for your card! ... again! x