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Monday, June 01, 2009

Lewis update

Just to let you know, Lewis will probably be in Doncaster Freepress (http://www.doncasterfreepress.co.uk/) and on Calendar (ITV local news channel) this week because of his Lyme Disease diagnosis.

3 comments:

Joanne said...

Waw! Samantha you did not waste any time. I am so impressed.

I was just catching up on my garden blogs when up popped your message.

I look forward to reading the article and hope you post up on Eurolyme as others will be well pleased you are getting the message out.

Hugs to Lewis.

Anonymous said...

hi my daughter is called melody brook and is also on the internet she was 4 and a half wen she went back t been a baby , the same symptoms as lewis and she is now 5 and am at the end of my tether its been awful seein her go from normal child t unable t walk hold her head up ect... i have been blaming the mmr jab for this as it happened more or less straight after . its been 10 months and she has lost everything but her mentality is stil ok although she can not talk anymore. i saw lewis tody on the news and am wondering if his mother could please get intouch with me via the internet if she could type in MELODY BROOK MMR there should be a link where she can contact me as melody has also had every test come back normal even mri scans and i desperatly hoping its this lymes dieses so she can also have treatment. if lewis's mother is reading please contact me x thank you very much..alicia ellis

Anonymous said...

hi its melody brooks mum again , joanne i just wonder if u are able t contact me . email me at alicia.ellis@btinternet.com and then i wil send you my number this is really important to me, thanks again. x

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!