November
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So November is almost over ... and its nearly time to put the Christmas decorations up!!! Just over 4 weeks until the big day!
Lewis has been okay until just this last week when his seizures have increased hugely - Lewis normally has one or two seizures every few months, but with autumn and winter taking their toll and the additional bugs spreading around, he's had several a day for the past few days with temperature spikes, clamminess, increased twitching and lots of crying which, if you know Lew, is very unusual, so we know he's feeling rubbish, we just dont know how to make it better aside from lots of love and cuddles and calpol!
So we're lucky enough to be able to spend a few nights in the Bluebell Wood Childrens Hospice which is where we are off to this afternoon. Lewis' friend from school, Matthew, is also going to the hospice this afternoon so we'll have some good company over the next few days along with Matthew's mum Debbie and Matthew's scrumptious baby brother Ethan! Lewis loves seeing Matthew and Ethan so it will help to cheer him up!
Thank you so much to Lewis' Postpals (
http://www.postpals.co.uk/) for his super Horrid Henry blanket
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and also to Valerie and family for the postcards and the tiny bead fairy!
Catch up on old posts HERE!
Take a look at other videos of Lewis at YouTube
The Lewis Jeynes Fund
The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.
Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.
Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.
i love you much (most beautiful darling) by e.e.cummings
i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love
1 comment:
Hey!
That quilt is absolutely fab!! Well done to the lovely people who helped make it.
Not long til Christmas now!!!
Take Care ...
xXxXx
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