Please leave a message for Declan Kelly, Lewis' buddy, who is not very well at the moment - http://www.caringbridge.org/visit/declankelly
Sunday, June 08, 2008
Hot June!
Here is Samuel doing his art homework - a view from a window. He is very good at drawing! Doesnt get it from his mother!
Here is Lewis asleep on his swing in the garden - along with Upsy Daisy and Makka Pakka!!!
Look! On the lake at the moment its like a kindergarten! Lots of baby ducks and awww the cygnets!!
Today Lewis went in the pool with Daddy. It was lovely to cool down on such a hot day!
Grandad came over to lunch and to play. Granny is on a yoga holiday in Majorca so she didnt make it!
Finished in the pool, and back in the shade chilling, lovely!
As you can see, I didnt keep out of the sun today!
Lewis loves has his photo taken - can you tell?!
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The Lewis Jeynes Fund
The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.
Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.
Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.
Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.
Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.
Useful links
- Post Pals - great site for helping poorly children smile
- Bluebell Wood Childrens Hospice
- The Mighty 'C' - my brother's amazing blog
- Kirsty A - a very special lady
- Nathan Bovell - scrumptious dude!
- Declan Kelly - gorgeous boy!
- Parents of Kids with Epilepsy
- My fantastic photographer friend
- Samara's video - please please watch
- Natalie Robinson - Lewis' LURV!
7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!
i love you much (most beautiful darling) by e.e.cummings
i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love


3 comments:
Such lovely pictures of Lewis!!! Wow, Samuel is such a great artist! Can't wait to see you all again. Been WAY too long.
Love to you all.
Yolanda
Samuel that drawing is AWESOME!
Can't wait to see you all in July.
Lewis is looking scrumptious.
Lots of love
L xxxx
Lewis is such a beautiful child, his case reminds me of my granddaughter, Kayla. She had many symptoms as Lewis does. Have you had him checked for Nieman Pick Disease - types A,B,C & D.
Whatever the case, we'll keep you in our thoughts and prayers for a diagnosis for him.God Bless-
The Decker Family
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