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Monday, February 11, 2008

We've been so busy!

NB. On Monday, please check out www.mumsclick.com for Lewis' story. A big thank you to Mumsclick, a fabulous website for mums, for offering to feature Lewis' story in this way! Thank you to Lewis' super postpal Helen for the funny puppet! It made us all laugh!
NB Kirsty A (www.postpals.co.uk/pals/kirsty+A) is fundraising for the Wish Upon a Star charity to send 100 poorly children to Lapland to visit Father Christmas. Please if you get chance, check out Kirsty's website (http://www.kirstysstory.co.uk/). Thank you so much for your letter Kirsty! Is it this Thursday you are on Channel 5 at 11.45am? If so, lets hope lots of people watch it and read about your huge fundraising efforts! Thank you to all Lewis' postpals who have sent him post this last couple of weeks. Lewis got a lovely card from Alice P and Milly P. Milly P is on postpals (www.postpals.co.uk/pals/milly+p) so please take a look at her page. Just this month Alice's and Milly's parents have received some difficult news - Alice P is now ill with Hodgkins Disease (www.postpals.co.uk/pals/alice+p). We hope you can find time to send both Alice and Milly a card at this difficult time.
A special thank you to Lewis' pal Noah and his mum Niki! They got Lewis a colour phasing Moomin and a lovely sunshine card!
Here is a picture of Noah on his mobile in Paris!! ...
We had a lovely postcard from the New Forest from Lewis's postpal Karen Sami ... And a beautiful handmade card with an aeroplane on from Niki W ...
And THREE cards from photobox greetings (two were the same from Jenn! and one from Postpals team).
Thank you very much Julie Barrett for the lovely Mr Happy card and Mr Happy book! Thank you also for the emails we have received from Postpals! We do try to reply to all emails and to mention cards and gifts on Lew's website and to say thank you personally if we can (if you give an email address or contact address, we will send a reply). All Lewis' cards and pictures go on his wall which is getting very full!!!
This weekend we went to Twickenham to visit our family. We had a lovely time, the weather was beautiful - like summer! Here is Lewis' cousin Millie with mad Aunty Samantha (me!). Millie is just three weeks younger than Lewis!
Here is Lewis enjoying a cuddle with Aunty Tania (Millie's mum).
Here is Lewis with Aunty Tania and with Millie. We were at a play area by the River Thames at Twickenham.
On Saturday afternoon we went to Evie's birthday party! Evie is Lewis cousin and she was 3 on Saturday. HAPPY BIRTHDAY Evie! We had a wonderful time! Here is a photograph of all the grandchildren - Lewis, Samuel, Millie, Daisy and Evie.
Evie had fun opening her Birthday presents and Millie and Lewis helped.
There were lots and lots of balloons at the party!
Another photo of all the grandchildren together. Evie was practising making monster faces!
In this photo, Millie is making faces too!
On Sunday afternoon we went to the park.
Thank you very much indeed Aunty Tania, Uncle Nathan, Daisy and Millie for the lovely presents! Lewis loved the books and the teletubbie bath toy.
On Monday, on our way home, we popped into Luton to visit Declan (http://www.declan-kelly.com/ and www.postpals.co.uk/Pals/Declan+K). Declan's mum Caroline has become a very good friend and it was wonderful to finally meet her and Dec and Kyle (Dec's brother) in person. Lewis borrowed Dec's comfy chair for our visit!
Lew loved having cuddles with Caroline, especially as she is blonde!!!
I had a cuddle with gorgeous Dec. He is 5 years old and very very tall!
Declan and co had bought Lew a lovely present of a glowing bear which lights up when you press a magic wand! We were hoping that Nathan would also come along with his mum Anna, but unfortunately Anna wasnt well so we will have to try and meet up all together another time! Anna and Andy (Nathan's mum and dad) had some amazing and miraculous news late last week. In a recent scan, the doctors noticed that some damage that Nathan had to his brain had healed part of itself. This is a true miracle and it means that Anna and Andy have had to start thinking differently about their little boy and what his future holds. Let us hope that this year will bring miracles to us all. You can read more about Nathan on his website www.caringbridge.org/visit/nathanbovell
A HUGE thank you to SOLACE (Society of Local Authority Chief Executives and Senior Managers) who raised a massive £5230 for The Lewis Jeynes Fund! The money was raised at the SOLACE Annual Dinner in London, so a big thank you to Byron Davies for agreeing to have Lewis' Fund as the good cause at the event.

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Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!