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Tuesday, February 26, 2008

Ei'n filwr fach - Our Little Soldier

My wonderful friend wrote this verse for Lewis' birthday. Its so moving, I wanted to share it with you all.

Ei'n filwr fach - Our little soldier

He was a child with up and go

Looking forward to developing as he loved to show

He filled up the trolley in Tesco's one day

With goodies for him along the way

He'd play footy with Daddy and Samuel too

Nothing could stop him as he was nearly two

Then all of a sudden, they suddenly knew

Without explanation, his walking withdrew

This continued at a very fast speed

Until his body shut down even down to his feed

He's baffled the doctors and specialists too

But this hasn't stopped Lewis

Saying "how do you do"

It may only be said with his eyes these days

But our Welsh Valley accent

Gets chuckles and smiles in many ways

And now that he's four

We'd like to share these words with you

Have a fantastic Penblwydd Hapus

And of course Happy Birthday too

Thank you Angela. We love you so much and cant wait to see you next month xx

3 comments:

Anonymous said...

Dear Sam and LEW,

That is so beautiful and is so so true, Lewis is one hell of a special little boy honey and no more words needed "WE KNOW".

What a milestone four is honey and heres to many more!!!

Love Caz and her little Breakdancer
xxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Anonymous said...

awwwww, that is so lovely. You have all touched my heart since this time last year when i started writing to all of you.

HAPPY BIRTHDAY for tomorrow Lewis! Hope you have lots of fun!! :)

Love Sian
XoXoX

Anonymous said...

Aaaaaaw, love it...very touching!

Have a fantastic 4th birthday tomorrow lew!!

Luv lawseeeey!

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!