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Friday, December 28, 2007

Photos from Christmas, as promised

Here is Lewis' friend Luke practising his reading!
Debbie and Matthew treated us to bowling and we also got to meet Father Christmas and he was LOVELY!
Lewis loves playing with his musical instruments, especially when he's not feeling too good and we cant go outdoors.
We went to visit Karen and Joe, William and Bethany, Elisha and Emily, and Lew was so happy to see them! He especially loves the girls!
Lewis loved having a cuddle with Elisha.
Lewis and scrumptious William.
Lew with mummy, visiting with Karen and Joe and the children. We had a great time, Lew enjoyed having cuddles with the children and being entertained by their dancing and singing and playing!
At the Bluebell Wood Christmas Party in Sheffield. Matthew and his dad Robert had their photo taken with some Star Wars characters!
Us at the Bluebell Wood Christmas Party.
Lew got to meet Father Christmas AGAIN! He was so lovely and Lew really enjoyed meeting him.
At the end of the party, it SNOWED! (Indoors!).
As Christmas approached, Lew's health got worse and he wasnt feeling very well at all. So it was a lovely surprise to receive a gift from one of his Postpal friends.
He also got a lovely card!
These beautiful window decorations from Lewis' cousin Evie really do brighten up his bedroom!
Stuck indoors again as Lew wasnt well, so we got the musical instruments out again and played Christmas songs! Lew loved watching Miss Jodie!
We really really needed some fresh air, so we braved the cold for a walk around the lake to feed the birds. Lewis was really excited that his friend Luke could come with us!
Back home in the warm, having a go on the Nintendo Wii!
We were very lucky indeed on Christmas Eve to be able to travel to Leicester for lunch with Nathan's mum Anna, dad Andrew, and his grandparents Myrtle and Michael. (www.caringbridge.org/visit/nathanbovell).
Lew was too poorly to go in the pool, but Nathan loved it and I had a go too! Very nice way to spend Christmas Eve, especially after a delicious lunch!
Christmas Day finally arrived and Samuel and Lew were thrilled to receive so many parcels from Postpal friends. Thank you so much Postpals!
Thank you Aunty Lucy, Uncle Mike, and cousins Katy and Emily for the fabulous books and the DVDs!
Thank you Caroline, Mr Caroline, Kyle and especially Declan for the super cool cheeky monkey top and jeans! (www.declan-kelly.com).
Thank you so much Maisie and Oliver for the super dancing snake!
Lewis and Samuel (and me and James) got a huge box of pressies from our special Postpal Sian and her little brother Jamie!
Later, Granny and Grandad did some dancing for Lewis! Also in the picture is Lew's Pingu which he loves! Thank you so much Evie (and Aunty Nicola and Uncle Lee).
Granny reading Lewis a story.
Later, after lunch, we played a game! Granny and Grandad Colin and Grandad Skinny made us laugh!
On Boxing Day Lew was very poorly so spent most of the day in bed sleeping. Later in the evening he came downstairs for a cuddle with his Granny and Grandads.
Lew hasnt been well over Christmas, but we have managed to stay away from hospital! Today (28th) Lewis is feeling much better, so fingers crossed his illness has passed and he can keep improving in time for 2008!
We hope you have enjoyed our selection of photographs from the Christmas period. Thank you to our family and friends and of course postpals (http://www.postpals.co.uk/) posties for all the wonderful gifts and cards Lewis and Samuel received.

Tuesday, December 25, 2007

MERRY CHRISTMAS!!!!

A very Happy and Merry Christmas from the Jeynes Family to all of our family and friends! We have taken lots and lots of christmas photographs and will share them with you later in the week. Love and kisses to everybody, especially to Declan Kelly who we hope is having THE BEST CHRISTMAS DAY EVER! We love you soooooooooo much Dec xxxx (www.declan-kelly.com)

Tuesday, December 11, 2007

'Tis the season to be jolly!

PLEASE TAKE A LOOK AT OUR GUEST BOOK! LEWIS AND MATTHEW GOT A MESSAGE FROM FATHER CHRISTMAS!!!! Lots and lots of Christmas stuff going on at this time of year! Its great! We are soooo busy!
But please do remember the children who will be in hospital or very poorly at home or in hospices at this time of year.
Lewis' buddy Nathan has a chest infection and is feeling a bit rough (http://www.caringbridge.org/visit/nathanbovell).
Lewis' other buddy Declan is still in the hospice, but his mum and dad and big brother are hoping they can have Declan home in time for Father Christmas on Christmas Eve (http://www.declan-kelly.com/).
There are so many children you can help and support this Christmas at http://www.postpals.co.uk/.
And of course not forgetting Lewis who yesterday afternoon was rushed to hospital in an ambulance as he had a massive tonic clonic seizure (3rd in his entire life) which frightened both James and I immensely. We got him home again late yesterday evening, but the medication he had been given made him very zombie-like which was scary in its own way. He's back to himself this morning, so fingers crossed no more horrid seizures this year please!
Thank you to all the postpals Lewis and Samuel have received cards and gifts and letters from so far this month. Thank you to Despina for your card, thank you to Kate Dee for your card, thank you Laura H for the card, than you to Sian and Jamie for the huge Christmas parcel and letters and card, thank you to Julie and Alan Barratt for the cards and the Christmas parcel. Thank you very much to Postpals for Lewis' Christmas gift (the singing and flashing Christmas tree!). All the wrapped gifts have gone under our Christmas tree until the big day! We are not sending Christmas cards this year, so please dont feel offended that you havent received one from us if we normally send one.
Lewis has been able to go back to nursery this month which he has really enjoyed! He also went to a Christmas party with Homestart (http://www.home-start.org.uk/) and met Father Christmas a little bit early! Lew had his face painted too! He enjoyed meeting his friends Daniel and Heather too who were dressed in their Christmas outfits!
We went to visit Lew's school which he will start in January. We are very very excited about this, although of course very nervous too!
We had a great day on Saturday, we went to Fundays for a party, and then Tobey and Callum came back to our house and we played on our Wii!
As always, we hope you enjoy the photographs!

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!