Lewis Jeynes's Fan Box

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Wednesday, August 15, 2007

Quick Update

Lew and Andrew the guinea pig!
Some exciting news from the Make A Wish Foundation!!!! http://www.make-a-wish.org.uk/
A while back, we approached Make A Wish on behalf of Lewis and just recently we had a visit from 2 very lovely representatives from Make A Wish who came to meet with Lew and to talk about what kind of wish he might like. Well, without going into details just yet, we had a telephone call from Sandy at Make A Wish on Monday evening to say that Lewis' wish has been GRANTED!!!! Please do have a look at the Make A Wish website and help if you can. We will let you know more about Lewis' wish when we have confirmed the details!
This week Lewis enjoyed visiting the hydrotherapy pool at the hospital and I have added a video to our You Tube webpage (http://www.youtube.com/SmnthJeynes)
The Marathon Man!!! Mike Bennett managed to run in and finish the Monschau Marathon on 12th August! Well done Mike! If you did sponsor Mike, please do get in touch about handing over your sponsorship money!
Mike before the run ....
Mike after the run ... !
Mike make good time and he did really well to finish the very difficult run so thank you Mike, well done, and we hope you are enjoying a well deserved rest now!
Mike said - 'I made it round in 4 hours 5 minutes, which I was quite pleased with. I had hoped to beat 4 hours but in the end it just wasn’t possible. It was a great experience but undoubtedly the most difficult physical challenge I’ve ever done. I had a great time though and was really pleased to able to raise some money for such a good cause. Lots of people have been really touched by Lewis’s story and I know some people have been really moved by the blog. I’d like to say thanks to all those who supported Lewis by sponsoring the run and thanks to James and Samantha for letting me do it. '
Lew and the Bookstart bear at our local library!
Lew and his super cool iTeddy!
Fireman Lew!
Lew in Daddy's glasses!
Hello, just a quick update and some photos for you to enjoy, plus some thank yous as well!
First of all though, Lew was ill over the weekend with high temperature, sickness and diorrhea and we ended up having to go to hospital in an ambulance. He is fine now, but it was very stressful for a couple of days!
Some thank yous now:
Thankyou to Gifford Ltd for their tuckshop donation! I hope the tuckshop is selling healthy seeds and pulses and not naughty sweets and cakes, but whatever they are selling, the very generous and regular donations to the Lewis Jeynes Fund are very very much appreciated!
Thank you to Rachel, Nick, Phoebe and Heidi Ashcroft for their very generous donation to the Lewis Jeynes Fund. Your donation will go a very long way! Here is a photograph of Pheobe and Heidi enjoying a ride at Disneyland Paris earlier this year.
Thank you sooo much to Catriona, Neil, Tilly and Eliza (and boy bump!) for Lewis' iTeddy! He loves it! Its great, and we have told all our friends about it and they all want one! Here is a photograph of Tilly and Eliza (aka Things!).A quick hello to Hannah Cann and her best friend Mollie who Lewis and I were very lucky to meet yesterday! You may recall that Hannah made a super card for Lew and as she lives locally with her grandparents, we arranged a meeting and went over yesterday afternoon for a lovely cup of tea and a chat! Thank you also Hannah for the Crazy Frog and Tiger toys which Lewis loves! It was lovely to meet you all and we hope we can meet up again soon!
Thank you to our super PostPals Sian and Jamie for the swim shorts for Lew and the cool Thomas the Tank Engine hat and of course for your lovely letters and finally the photographs! I will try to get them scanned in so I can put them on the website!!
Finally, thank you so much to Mary Appleton and family, the Jumbulance Trust and all at Bati About Kidz for inviting us to join them on a trip to Disneyland Paris Resort. It was wonderful to meet everybody, some very very special people. It was a very last minute decision to go on the trip, literally we decided on the day, yes we will go. I had put it out of my mind completely as it just seemed too much for Lewis to be able to cope with.
Well, we did go and we managed to have a good couple of hours at the Park before Lew got ill, and sadly the rest of it was spent in our room and then in the hospital. We did get some good photographs, but as Lew was feeling very rough when they were taken we didnt get any smiles. Mary and co have invited us to join them in future on another trip, if you havent heard of Jumbulance, it is an amazing coach/ambulance that has medical equipment on board as well as trolley beds for those who are unable to have a regular seat. It makes travel possible for adults and children who would not normally be able to go far.
Lew in the Jumbulance.
Lewis and Samuel on the Jumbulance.
On the ferry home.
At the Armageddon ride which James and Samuel went on.

Lew in hospital.

We cant remember all the names, but particularly hello to Natalia, Briany and Mo, to Christian and his mum and dad (we LOVE you Christian!), and to gorgeous gorgeous Abigail and her mum and aunty.

2 comments:

Anonymous said...

luvin the pictures! sooooo cute! arrggghhhh, not the pictures of meeeeeee! lol the ones of Jamie are good. Hope Lewis is feeling better and manages to smile more now.
Its great news about Make a Wish Foundation to!

Love
Sian XoXoX

Anonymous said...

I've been so touched by your story. I hope Lewis is feeling better soon and back to smiling.

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!