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Monday, July 02, 2007

So much to do,so little time to squeeze it all in!

As usual, we've been super busy so I havent had time for an update and this isnt a proper one as I still havent got time for a proper one, but just a quick hello from us and to say Lew is doing okay, we think he's got a bit of a cold so we're trying to make sure it doesnt develop into anything more serious, especially with his surgery coming up two weeks today - very scary. Please, even though we dont get chance to update often, do leave your comments as it really does mean a lot to us, its like our 'guest book' so we know you have read the blog, have found it interesting (or not?!) and its just nice to say hello! So, I will update later this week, soooo many photos and so much news of our exciting activities! But until then, please remember Lewis is going into hospital on 16th July for his surgery so if you are that way inclined, please do pray for us. As you will have seen if you have visited Nathan Bovell's website (Lewis' partner in the crime of keeping mummy and daddy on their toes!) Nathan is also having surgery in July so please, your thoughts and prayers for Nathan too as, like Lewis, he does not react well to anaesthetic and neither Nathan's parents, nor James and I know what will happen on the other side of the anaesthetic so it really is a difficult and very frightening time. Your prayers and thoughts will help us through, I'm sure. So, until later this week!

3 comments:

Anonymous said...

Glad your all ok, and hope Lews cold clears up asap..

Lookin' forward to the update later in the week...lets hope its a Sunnier week eh... afterall it is july!

take care,

lawseeeey!

Anonymous said...

Hi,
awwwww poor Lewis, hope he feels better very soon. Cant wait for the next update and lots of pics too! Will be thinking and praying for you all when Lewis goes in to have surgery. Will do for Nathan as well.

You are all sooooo brave - keep it up :)

Lots of love
Sian XoXoX

The Pettifers said...

Oh god I missed your birthday!!! A million apologies. Anna was in hospital but it's no excuse really. Pressie on its way...


Lots of kisses xxxxxx

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!