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Thursday, July 19, 2007

Home again, home again, jiggety jig

We are home again. Lew seems to be fine with his PEG. Will hope to get used to it over the next few days. Will post properly, pics, etc, probably over weekend. Thank you all for your kind emails, texts and cards and letters. Also thanks to those who were able to visit - it meant a great deal to us.
(PS. Grandad took the photo above on the day before Lew went in for his op - now he doesnt have the ng tube anymore, we can see all of his gorgeous face!)
And here is a photo that Daddy took this Wednesday - Lew (with no NG tube hooray!) and Samuel, and the lovely windmill that Lewis received from his postpal Helen, thank you!

THANK YOU to Catriona, Neil, Tilly and Eliza for the WIGGLEDANCE Live in Concert DVD! We look forward to singing along!

Thank you so much Dessina (?spelling) from Chicago for your lovely postcard which will go on display on Lewis' special wall.

Thank you very much Rachel (postpal) for your two postcards from Wales. We hope you had a lovely and that you have a great time in Devon too.

6 comments:

donna.jeynes said...

Hi

So glad Lewis is Ok. I read your blog everyday and find it very sad.

Donna, Philip, Jake & Lewis Jeynes

PS yes we have a Lewis Jeynes as well!

Smnth & Co said...

Hi Donna

Is it Brenda's Lewis? If so, Brenda keeps me up to date on your Lewis who I believe just had his 2nd birthday. What a handsome fella he is!

Dont be sad - our Lewis is very happy and we try very hard to give him an interesting life. He loves to meet new people, he especially loves other children and blonde young nurses! He's a very flirty boy!

Samantha
x

Anonymous said...

Yay so glad your home and that lewis seems fine with his Peg.

Have a great weekend and do lemme know if theres a convieiant time for me to pop up and meet Lew sometime..i really wanna meet him after being intouch for so long now!

take care,

lawsey!

donna.jeynes said...

Hi Samantha

Yes it is Brenda's Lewis.

hopefully one day they will get to meet each other, we met Samuel at Wendy and Andy leaving due, who Jake loved.

Lewis looks a very happy boy and has a lovely cheerful face, just a shame u live so far away.

Donna

Anonymous said...

Glad to hear Lewis is doing well with his PEG.

Yay, no more ng tube and no more plasters! :)

Take Care
Sian XoXoX

Anonymous said...

We love you Lewis, sending kisses, cuddles, and big bear hugs.

Love

Cazand Deccy xxxxxxxxxxxxxxx

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!