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Monday, June 11, 2007

To me! To you!

So happy!
What a busy time we've had!
On Wednesday we had such a lie in! We were both sooooooooooo tired! Jayne actually woke us up at 10.30am otherwise I think we might have stayed in bed all day!!! So Jayne gave Lew a bath while I got showered and stuff, and then we went across to visit Karen and Joe.
When we arrived, Cheryl was there with Holly and Phoebe and Lew loved having a cuddle from the dogs! Karen made me a delicious lunch (she always does! I am so cheeky!) of piri piri chicken, rice and garlic nan bread, yummmmmm! Joe had sneaked some extra chillis in so it was extra hot and Karen and I had tongues and lips on fire!
Soon it was time for the children to come home from school, and Lew was soooooo excited to see them! He especially had eyes for Elisha and sat gazing at her for ages! He had lots of cuddles and kisses and loved watching the children bouncing around on the trampoline in the garden. Bethany had some special home work to do so we were all kicked out into the garden so she could concentrate! I had some lovely cuddles with the children, especially William and Bethany who were in my class when I was working at a school in Balby years ago! We arranged for Karen and co to come to us for a very special indian meal soon (super hot lots of chillis!) so we have that to look forward to!
As we were having such a great time with the children, we didnt get home until gone 8pm so it was straight to bed for a very tired, but very happy Lew!
On Thursday we had to get up EARLY EARLY EARLY because we were driving to Manchester! At 8am(ish) I was outside Denise's ready to load the car with car seats and children. Maisie was sooooooooooo cute! She was stood at the pavement all ready to go and sooooo excited! It was a loooooooooooong drive but with the Madagascar DVDs on in the back, the children were happy. On arrival in Manchester we found a great parking space and popped into Sainsbury's for some sweeties and a drink! The area was packed with young children all very excited to be seeing The Wiggles! Unfortunately, the seats we had booked were no good for Lewis in his wheelchair and it was not practical for us to leave his chair and to carry him/hold him on our laps, so Denise, Maisie and Oliver went to sit downstairs in the stalls, and Lew and I were escorted to the disabled seating in the circle.
We were allowed in early which was great! It was so exciting, such an atmosphere, and The Palace Theatre is beautiful! The show was amazing! Very entertaining and lots of fun! And one very special moment for us was when one of The Wiggles (Murray) came out into the audience and came over to say hello to Lewis! So we got a photo - but we werent allowed to use a flash so the photo was a bit rubbish! But you can just about make out Murray in the dark!
After the show, we met up again with Denise, Maisie and Oliver and headed off back home again to the quiet and sanity of Doncaster! The children (except Lew!) fell asleep in the car watching Disney Cars DVD - I am sure it wasnt the film that sent them off to sleep .... !
Denise popped into Asda on the way home to get some provisions for lunch and we had the most delicious pork, stuffing and apple sauce sarnies yummmmmm!
I cant remember much else about the afternoon except I was soooooooooooooooo tired!
So then it was Friday and HAPPY BIRTHDAY GEORGE PETTIFER! Our nephew had his 11th Birthday on Friday although it came alot sooner for him that it did us as he is in Australia!!!
Lew and I did the normal getting up and bathed and stuff then headed off for baby massage which was tummys this time. Lew enjoyed it as usual although he was a little bit restless. Then we went for lunch in a nice cafe (I ate, Lew didnt) and it was time to go off to Sheffield Childrens Hospital to meet with Dr Walker, Lewis' surgeon, to discuss his forthcoming op.
We have met Dr Walker before when she did Lew's skin and muscle biopsies late last year. She is really lovely and easy to talk to and she was very helpful and gave us lots of information about what will happen when Lew has his surgery. She explained about fundoplication (a band around the top of the stomach) and we agreed that at this time its not necessary so Lew is not having that done, which was quite a relief to James and I, I think.
We also got a date for Lew's operation - Monday 16th July - so we're on countdown for that now. Lew is expected to be in for at least 5 days, probably 7 days, which means I will be in too! We will of course welcome visitors, but not after 7pm please due to Lew's bed time! We think we'll be on Ward S1, but will let you know when we are sure. We will of course be very pleased to receive cards to put out by Lew's bed!
So, Friday evening, traffic between Sheffield and Doncaster - we had quite a long journey home, popped in to see POSH (!!) Roz and then it was straight to bed for Lew!!
Saturday - Lew got some awesome post! Helen B (postpal) sent him some Fly Eyes! They are soooooooooo cool, everybody loved them! Also, Samuel got a puzzle which he hasnt tried yet! Thank you soooo much Helen! xxxx
We didnt get up to much else except relaxing in the garden, until it was time to walk to The Dome for the Chuckle Brothers!! Paulash and Livia and James walked with us (they went to Asda and then to the Cheswold or some other pub where you can sit outside!) and me and Lew went in to get our seats for the show!
We had great seats and the show was AMAZING! The chuckle brothers are sooooooooooooo funny, appealing to children and adults alike, and I was howling with laughter! Lew got cream-pied (shaving foam stuff!)
The Chuckle Brothers are doing a pantomime at The Dome on 29th November so we MUST get tickets!
After the show, we were allowed to wait for autographs with Barry and Paul and they allowed children in wheelchairs to go through first. There was another young man who was waiting with us and he was definitely a Sheffield United Fan! We also met two lovely ladies who had been at the show who admired Lew's long eyelashes! Then we got to meet Barry and Paul and have a photo taken!!! Then it was off home (late night again!) and straight to bed for Lew!
WE LOVE YOU BARRY!!!
On Sunday we went to Nikhita's 8th Birthday Party! For some very strange reason I was convinced she was going to be 10! Doh! Anyway HAPPY BIRTHDAY NIKHITA for yesterday. We had a great time at Nikhita's party, complete with bouncy castle and magical musical candles on the cake! Lew loved spending time with all the children and Samuel had a very good time too! He even wore a pair of shorts and a t-shirt that wasnt black!
PS. I took almost 500 photos at Nikhita's birthday party so if you were there and you want to have a look at the pics and choose some you would like, let me know. There are too many to go on a single CD and I cant afford enough DVDs to give to everybody so please do come and have a look and we can pick off the ones you like best!

8 comments:

cheryl said...

Lovely photos!! Looks like you have had a fun weekend!

Will definately go to the chuckle Brothers pantomine!

Cheryl xxx

Anonymous said...

Hi to all,
we are going to go to the chucle bros panto as well,let us know when you get the tickets,something nice to look forward to.Looks like you have had a brill weekend and the photos are all lovely Lewis looks GREAT and so HAPPY.Take care luv all xxxx

Smnth & Co said...

Hello anonymous - we will let you know when we know who you are lol!

xx

Anonymous said...

YOU SAW BARRY! lol

Im at school (obviously) and me and saskia are watching army men out the window :) lol They are sooo nice..makes lessons that little more interesting :)
Hope you are all okay and stuffff!
Love from Daisy,Claire,Heather,Saskia,Sharnie,Charley,Sam,Lauren 1 and Lauren 2

(all the people that say hi) xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Anonymous said...

Another jam-packed blog from you guys - lovely photos :)

have a good week & take care,

lawsey

Anonymous said...

awwwww - cute photos! Looks like you enjoyed seeing the Chuckle Brothers - the pic of Lewis and Barry is well cool. :) Hope you all enjoy the rest of your week

take care and thinking of you all.
Love Sian XxxX

p.s. was the red top Lewis was wearing in one of the photos the one i bought him? Just wondering...

Smnth & Co said...

Hi Sian

Yes the Thomas the Tank Engine top - its the one you bought him!!!!

Anonymous said...

awwwwwww bless him, he looks so sweet in it! Thanks for putting it to good use. Hope Lewis likes it too!

Lots of Love
Sian XxxX

p.s. i am doing 6 pictures/nursery rhymes for Lewis, so you can put them up in his room. Only just started on them so you probably wont get them until next month. (i suppose its something to look foward to - well i hope so anyway)

Oh and i have some BIG pictures i have coloured in for Lewis too. Me and my mum are trying to work out how to send them. lol

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!