Lewis Jeynes's Fan Box

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Monday, January 08, 2007

monday

hello, what a good day we got up early as lew had his eye test at 9.38am precisely!! all was fine with that - no change since the last one several months ago we then went to early skills group and lew loved it!!! we met 2 new children and their families and enjoyed singing, activities - sticking pasta and colouring pictures. lew had a go on the touch screen computer and then we went to the sensory room for a bit. james spoke to lews neurologist today and lews mri from 20th december was completely normal!! he is referring us asap to professor sertes (sp) at great ormond street i was very relieved to hear the mri was clear when i brought lew back upstairs to be reconnected to his feed he went straight to sleep! we had a very productive visit from bluebell wood and are feeling very positive about what they can offer thankyou to teresa, van and olga for visiting - thank you van for the flowers and olga thank you for lewis books thankyou barbara for your visit and for lews scrumptious mickey mouse and my flowers! thank you to granny and grandad again for coming to see lew we got a card from mel - thank you mel!! rachel, nick, heidi and phoebe - thankyou for your email - keep in touch x

2 comments:

Wendy said...

Glad you had a good day - lots of love as always from all us Pettifers xxxx

Stephen & Yolanda said...

That's great news that Lew's MRI was clear! So glad the doc is getting you referred ASAP to Great Ormond St and glad you had lots of visitors! I LOVED the sensory room yesterday! SOOO relaxing & fun! Joel very unwell this evening we almost called 999 but managed to get his asthma under control but it was a long battle. He's now sleeping... phew! Love to you all from us all, as always. Still praying.

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!