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Monday, December 18, 2006

Stress stress more stress

Just when we thought it was safe to relax a bit before Christmas ... Lew has been booked in for an MRI on Wednesday at midday (they rang us today). So we'll be at Sheffield tomorrow for Lew's appointment with Dr Sharrard (metabolist) and then back again on Wednesday for an MRI which will involve a general anaesthetic again which is horrid, but these things are necessary, albeit horrid. So I feel all on edge again, all wound up. So what have we been up to today? We went for Samuel's haircutting with Jo this morning at Cannons Retreat. Jo did the most amazing job (again) and Samuel lurvs his new hair style! Then we went across to see Roz and discovered her in total chaos as she was having problems (understatement) with her new kitchen ... anyway its kind of getting sorted and the kitchen should be in and ready for use in time for christmas lunch haha! I am sooooo tired lately, not sure why. Lew received two Christmas cards today from post pal pals which was really lovely and has spurred me into action to send each post pal a christmas card from Lew. Problem one is I dont have enough christmas cards (solution: buy some more quick!). Problem two is I dont have any stamps. Solution ... BUY SOME lol! Problems solved! So I'll be doing that tomorrow morning before we go to hospital for our 2pm appointment. As for wheelchair services, unfortunately we will have to miss our appointment tomorrow afternoon at 1.30pm (physics rules that we cannot have Lewis in Doncaster and Sheffield at the same time haha!) so we are hoping to get an appointment very early in the new year and not have to wait until 20th February. Fingers crossed! Anyway, as I'm so tired, I'm off for a bath and bed early! Bye for now x

3 comments:

Lucy said...

Good luck tomorrow. I have got a friend has got a disability aids shop, so if there is anything you are struggling to get hold of, we can ask Mark to help.

Just can't wait to see you all!

Lucy xx

Wendy said...

Hi Darlings

Hope it goes well today - keeping my fingers crossed and as always will do anything I can to help.

Lots of love

Wendy

Angela said...

Hellooo Northern Friends - Just realised I could post a comment - twpsin (for those that don't know that's silly billy in Welsh). However it took me a lifetime to set up this google mayhem.

Anyway I hope all is well with Lew and he has positive feedback from all the tests he is further subjected to.

Did Samuel have a short haircut so I can tell Hannah (she misses her chats with you both so her message to you is get back on line).

Will be thinking of you all over the festivity period so take care and I will keep blogging.

Angela x

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!