Lewis Jeynes: Post Christmas update

Tuesday, December 29, 2009

Post Christmas update

Lewis has been ill since arriving home from hospital on Christmas Eve, with a stomach bug causing sickness, etc. He has not been able to keep his milk down so has been on fluid replacement and water for the past few days with as much milk as we can manage to squeeze into him without it causing further sickness. He's very weak and not himself at all and his head holding and speech attempts are zero. It's very sad but we are at the moment definitely putting it down to weakness, although the suspension of his antibiotics due to his massively increased seizures cannot have helped at all. Its a very frustrating time .. I think Lewis needs a long holiday in a hot country - this cold weather is no good for him at all :(

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The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love