Lewis Jeynes: Lewis in hospital

Friday, November 13, 2009

Lewis in hospital

Due to massively increased seizures, Lewis is now in hospital again. Since Monday evening he has been in a seizure cycle with seizures varying from 30 seconds to 3.5 minutes, and recurring every 5-12 minutes. As he has seizures only when he's asleep, as soon as he has settled into sleep, the seizure cycle has started so he's exhausted!!!

Last night he was started on a new drug (chlobazam) for a 3-day trial to see if it can break the cycle. Last night he had 39 seizures with a 2 hour break. This afternoon he fell asleep at 1.45pm and had a seizure at 2pm but has then slept from 2pm until 5pm when I left the hospital as his Daddy has taken over for the weekend. Let's hope this new drug will break the cycle so Lew (and us!) can get some sleep again!

Lewis was, as ever, immensely brave when having his canula inserted! And his flirting skills have not depleted at all ... he was wowing the nurses as usual with his long eyelashes and his gorgeous smile!!!

He will be in hospital for a few more days while they resolve the seizure cycle and discover if the new drug will work for Lew so fingers crossed he'll be home early next week.

Thank you to Postpals for Lew's letters and cards this week :)

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The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love