Lewis Jeynes: Fingers crossed

Tuesday, November 20, 2007

Fingers crossed

Fingers crossed Lew is much better today. He had a really good night and with his milk water down to 50/50 and on a very slow drip overnight, he has managed to keep most of it down, PHEW!

So today he's actually dressed and in his chair, rather than in his bed!

Yesterday was a horrid horrid day, when you cant see any future and any light and so horrid depressing negative thoughts crowd in to fill the space.

I will do the fashion show pics etc, later this week (still catching up on everything from being in hospital) but for now here are a couple of very cute pics of Lew with his cousin Evie who came to stay with us at the beginning of the month.

Also a quick but very big thank you to Lew's cousin Millie from London who sent him some colourful pictures for his wall.

4 comments:

Anonymous said...: So glad to hear Lew is doing a bit better. I am so sorry you have had such a rough week... you have been on our minds so much. Joel seems better now so we hope Lewis will be better for Saturday... we are happy to work around you guys for time etc. See how you feel. We love you lots! Take care.
Yolanda; 20 November 2007 at 19:32
Anonymous said...: Glad to hear Lew is feeling a bit better -his new room looks very cool. I agree about this grim weather - its enough to make the best of us feel miserable.Hope to see you all soon. Love R, N, P & H xxx; 20 November 2007 at 21:08
Unknown said...: Keeping fingers crossed for you all. It's been a really grotty few days here - dark when you wake up and dark again very early in the afternoon and wet as well. What a change from last week when I was in London and everywhere looked so good in the sunshine and the skyline was amazing in the clear, crisp evenings. Thinking of you all.; 20 November 2007 at 22:58
Anonymous said...: HO HO HO HO HO HO HO

SANTA IS COMING, HOPE YOUR FEELING A LITTLE BETTER SWEETIE PIE!!!!!

WE LOVE YOU, DID YOU KNOW THAT BY NOW HEHEHEE

AUNTIE CAROLINE AND PP XXXXXX; 22 November 2007 at 08:51

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The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love