Some photos from the past couple of weeks

Enjoy the photos - they are out of order (the latest ones are first, the older ones are at the bottom!) but I'm too tired to sort them out!!! This a pic of Lew yesterday afternoon in the assessment unit at DRI

This is from Tuesday 3rd July when Lew had his orthoptic appointment This is from last night when Lew had his second seizure and I thought we might have to phone another ambulance. You can see his mouth is twisted slightly and his eyes are staring - he was unconscious and seizuring but thank goodness it only lasted 2 minutes. This was Oliver finding a new way to play his game!

This is Maisie preparing for Royal Ascot or Ladies Day at the St Leger Festival!

This is Lew in bed with his splints

There were quite a few geese on the lake the other day! This is Lew today (9th July) with is new head support which Anna (Nathan's mum) very kindly sent us in the post. It stops Lews head from flopping forward in the car. It doesnt look great, but it works and that is what matters!

This is Lew in bed this morning with his second gift from Anna and Nathan - a cheeky monkey!

On Thursday Lew got a surprise present from his other friend Declan which was a glow monkey and some super cool Bob the Builder pyjamas!!!

Lew fell asleep on Mandy in Fundays on Wednesday afternoon!

Before Lew fell asleep on Mandy he had great fun playing with Marie in the ball pool! No wonder he fell asleep!

On Tuesday afternoon Kath and Janette came from physio to fit Lew into his monkey stander again as he has grown 2 inches in the last 2 months!

Lew was alot happier about being in the stander when he was allowed to watch The Chuckle Brothers!

On 30th June we went to a fantastic Fun Day at New Tribes Mission near Grimsby. Despite the miserable rain, everybody had a fantastic time, lots of delicious food, cakes, face painting, caricatures, bouncy castle, activities, and of course we got to spend the day with Yolanda, Stephen, Naomi, Joshua and Joel!

Thursday 28th June was (yes I admit it) my Birthday. We had a lovely day with Yolanda and family in Grimsby but I was very sneaky and didnt let Yolanda know it was my birthday!!!

Yolanda, Stephen, Naomi, Joshua and Joel made an incredibly generous donation to the Lewis Jeynes Fund - thank guys, you know we love you and it is so great that we are able to see each other a bit more nowadays - we're okay in the summer - its the winter (coughs, colds, snow) that keeps us apart lol!

On Sunday 24th June, James, Lewis and I went to Normanby Country Park. It rained rained rained, but we're English - we are used to it haha!

So I hope you enjoyed the photos.

Lew didnt get much sleep last night (he had a second seizure at 10.25pm but it only lasted 2 minutes thank goodness). Today we did a few jobs around (dropping off wee sample at hospital, picking up prescription for epilepsy medicines from doctors, picking up medicines from chemist) and then Lew went to bed at 6pm. He did have another seizure this afternoon just after 4pm which lasted for 4 minutes, so still not quite the magic 5 minutes which means rescue medication and possible ambulance.

I do want to say thank you so much to the nurses at the Doncaster Royal Infirmary Childrens Assessment Unit (CAU/PAU) who were great with Lew (as usual) and really looked after us.