Update

Lewis is alot better today after having a bit of sickness and a high temperature. We have also spoken to Lewis' paediatrician about antibiotic therapy and specialist physio as well as the specialist doctor who did Lewis' Lyme Disease testing. The specialist doctor has said: The tests indicate a chronic immunosuppressive situation associated with Lyme disease and Dr Schwarzbach recommends Chlamydia pneumonia testing, plus antinuclear antibody titre. The latter I think you have already had performed. So we'll let you know tomorrow if we hear any more!

Update

We are still waiting to hear from Lewis' paediatrician about when he can start the antibiotics. We hope to get something sorted very soon. Obviously every day we are waiting is a day too long. Lew has been ill for long enough and its very important to us that we get him on the road to recovery as soon as possible. Of course there are worries. My main worry is that Lewis has contracted Lyme Disease since he got ill and that he still has his underlying mystery illness, and that the Lyme is something extra on top. I am hoping with all my heart that this is not the case, and that Lewis' condition was caused by Lyme and that it can be reversed with the antibiotics and the intensive physio. We have also read that Lyme responds well to alternative therapies such as accupuncture, so we will look into this as well as time goes by. Thank you to everybody for your lovely messages. We are very excited, very hopeful, but also very scared!

UPDATE

Lewis' dad has spoken to the doctors. Lewis definitely does have chronic Lyme Disease. He should be started immediately on a course of IV antibiotics (this could be 2-3 years treatment) which will involve a drip for around 2 hours a day so he will have to have a port-a-cath fitted. As he starts to improve (we hope!) he will need rehabilitative physiotherapy. Its all VERY exciting!

Test results

We have today had the test results back from the lab in Germany for Lewis. We will know more once we speak to the doctors on Tuesday (darn Bank Holiday weekend!) but here is what the results say: Lewis' CD57 cell count is indicative of a chronic immune suppressed situation caused by borrelia burgdorferi. We will let you know once we have spoken to the doctors on Tuesday what the next actions will be.

Update

Here is Lewis with a batch of post from Postpals! He loves receiving his Postpals mail!! Here is Lew at the park with Ethan. Here is Lew asleep on the garden swing after a busy day learning how to read with Mummy! Here is Lew with his Postpals post again! An Easter card from Postpals ... Another Easter card from Postpals! A lovely Easter card from our friends Angela, Len, Jenna, Ashley and Hannah in Wales! A very cute Easter card from Postpals! Some VERY cute eggs from Postpals - thank you! At the park with Mummy. Lewis picked a flower for me on his way up the drive from the school bus! Lewis and Rachel. Lewis and Samuel and the light up balloon! Lewis and me at the park in very sunny Twickenham! Lewis in Nanny's garden in Twickenham.