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I have two wonderful sons. Samuel is almost 17 and has severe haemophilia A. Lewis is 6 years old and until the age of 2 was completely normal, your average walking, running, talking toddler but at the age of 2 he started to degenerate physically and is now less mobile and able than a newborn baby. Mentally he is fine. He has had countless tests - all normal. This blog is about life with Lewis.