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Thursday, January 24, 2008

School and stuff!

PLEASE LOOK OUT FOR CHAT MAGAZINE! Lewis' friend from school - Jack Hardisty - is in CHAT magazine this week so please do try and get a copy and read about super brave Jack and his very brave family! It's a sad story but with a very happy ending!
Lew absolutely loves school! He looks so cute in his school uniform, but I keep forgetting to take a photograph - probably because we are in such a rush on school mornings to get him ready!
Lewis had a special treat last week when he went to visit his friend Tobey in Austerfield. We have purchased a bean bag 'seat' which we can take with us when we visit friends and it means Lew can be more involved when his friends are playing, rather than sitting high up in his wheelchair, or being propped up on cushions on sofas. On Thursday we went to Sprotborough to visit Rachel, Heidi and Phoebe, and of course gorgeous George! We had a lovely afternoon, Lew really enjoyed spending time with Heidi and being 'kissed' by George who has grown SO much since we last met him! Unfortunately, we forgot Lew's new beanbag, so he ended up propped up on the sofa with cushions again!!

Wednesday, January 16, 2008

The Deep!

What a fab day we have had today! We went to The Deep at Hull (http://www.thedeep.co.uk/) with Lizzie and Mavrick and we had the best day for a long time!

Monday, January 07, 2008

Lewis first day at school!!!

Well, Lewis went to school today for the first time and he LOVED it!!!
He went from 10am to 2pm and I think he would have liked to stay longer!
The topic at school today was the weather and Lew had his feet in water (like rain) and he painted a puddle picture with his feet and some blue paint!
Lewis' favourite cat, Charlie, has been spending alot of time with him lately!
Earlier this week Lew had a very bubbly bath with Marie.
Yesterday was Lewis' friend Jay's birthday party and he was 5. HAPPY BIRTHDAY JAY! Lew had a great time at the party, he really enjoyed the entertainer as he had a puppet called ... LEWIS!!! (www.andygreaves.co.uk/shows.htm).
This afternoon, after school, we went to visit with Denise, Maisie and Oliver, and Lewis loved seeing the Tigger Show! We didnt have the camera to take photos, but Maisie and Oliver dressed in Tigger outfits and did a very bouncy show for us! Thanks Maisie and Oliver, it was great!!!

Saturday, January 05, 2008

Welcome to 2008!

So here we are, another year over and very high hopes that 2008 will be better for all of us.
And for Lewis, Monday is very exciting as he starts school!!! To begin with, he will go just 2 days a week, gradually increasing to a full week when he is 5.
Not new photos to share as we havent been up to much between christmas and new year, but we have got some lovely older photos which we'd like to share.

Lewis and James, 12th August 2006.

Lewis loving playing in the garden in the summer, 9th June 2007, just a month before his gastrostomy operation.

Lewis enjoying playing BOO in the bathroom mirror, 10th June 2007.

The day before Lew's gastrostomy op, 15th July 2007.

After Lew's gastrostomy, we could see his gorgeous face properly again!

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!