Lewis Jeynes: September 2008

Tuesday, September 02, 2008

Lewis update

It has been a while since the last post, its been very busy. So just a quick update to let you know Lewis is doing really well now after coming out of hospital on Saturday. Lewis had suspected pneumonia and then a possible strep throat infection and so has been on antibiotics for quite some time, first by IV and now orally (well through his tube!) at home. Lew is brighter than we have seen him for a long time. Lots of smiles and laughs! I will try to get some photographs on soon. And dont forget to buy the DAILY MAIL today (Tuesday 2nd September) and look for an article about Lew in the Health Pages or at Daily Mail online at http://www.dailymail.co.uk/health/article-1051552/How-cruel-disease-paralysing-little-boy--knows-kill-him.html Thank you to everyone for your emails, texts and phone calls checking on Lewis. ************************************************************************************** UPDATE 4th September 2008 Thank you to everybody for your emails, comments on Lewis' website and also in his guestbook. We will be replying to everybody soon and will be checking out all your suggestions with Lewis' neurologist. Lewis' story in the Daily Mail has spread as far as the US on the Fox News website - http://www.foxnews.com/story/0,2933,415801,00.html so thank you very much indeed to all the Fox News website readers who have contacted us too. We will be in touch. We also did a radio interview yesterday with BBC Radio Sheffield. You can hear the interview online at http://www.bbc.co.uk/southyorkshire/content/articles/2007/05/08/radio_sheffield_click_of_the_day.shtml and click on Wednesday. Lewis is feeling much better after his recent hospital stay. I will get some photographs up on the website very soon.

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love