April!

What a busy month April has been! Lewis started back at school on the school bus and 3 days a week instead of just 2! Very exciting! Although by Friday lunchtime he is absolutely shattered!! Here is Lewis relaxing in his sensory room after a busy day at school! Here you can see Charlie sat in the road waiting for the school bus to arrive! Charlie loves Lewis! Lewis got a huge amount of post from Postpals posties this month! Thank you so much everybody!

Lewis got a lovely card and 3 little puppets - a pig, a badger and a cow! We have lots of fun with these!!! Thank you so much to Abbie for your lovely cards! We loved the spider poem! Here is a picture that Lewis made at school! Aunty Nicola and Uncle Lee gave Lewis some money so with this we bought these fabulous birds - a duck and an owl - with real sounds when you squeeze them! Lewis took the duck to school and the other children in his class loved to listen to the quack quack quacking! Thank you for Samuel's cool gift! He is at the age now where he loves his smelly stuff!!

Thank you so much Jessica B for the lovely sparkly book, Animal Opposites, and for your lovely letter. I did try to reply by email but it bounced back! It was really interesting to hear about you as we get post from posties, but often we dont know much about them, so your little list of useful info was really great! Wow Helen F, we loved reading about your cats, and seeing their photos! We especially liked the pictures of the cats in the box and in the basket! All the other pictures were really interesting too! We will have to decide which side to stick on the wall and which side will be hidden behind! Thank you again to Karen Sami for the lovely card! We have lots of cards from you that are in Lewis' day room as we like to look at them so much! Granny and Grandad have gone on a long holiday (for 6 weeks!) and so they have been sending Lewis lots of postcards, from South Africa and Australia! Lewis got this lovely bright card from Leona - thank you so much Leona! We know you've been sad recently, so want to send you some special love and kisses! xxx

Here is a photograph of scrumptious Ethan Crossland! Ethan is the new baby brother of Matthew Crossland who is a friend of Lew's from school! Here is Lewis with his biggest fan Heidi in her lovely Peppa Pig t-shirt. Also Phoebe was showing off her new cool shades! And here is Heidi with her cool shades! Her and Lew look like an old married couple sat in front of the TV! So romantic! Here is Lew with some more postcards from Granny and Grandad! Thank you so much Nathan and Anna and Andy for this fabulous CD which has songs on it that have Lewis' name on!

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A HUGE LOAD OF LOVE AND KISSES TO DECLAN KELLY who is not well at the moment. Declan, we think about you EVERY DAY, and we miss you loads! We hope you are well enough very soon to come home from the hospice so Mummy can put you on the webcam for us to blow kisses at! (http://www.declan-kelly.com/)

Here is Declan having a kiss from his big bro Kyle!

Our visit to Twickenham

After Easter we went to visit our family in Twickenham. (Declan may recognise this shirt!).

Millie dressed as a nurse!

Millie as Batman!!

Lew having a gaze at Aunty Tania!

Lew enjoying relaxing on the garden swing.

Millie followed Samuel everywhere!

Me and gorgeous Millie!

Samuel and Daisy together having a photo - can you tell they dont want a photo?! We have a photograph of them both in the same place when they were 2 and 1 year old! Awww

Lew enjoying chilling with Daisy!

Millie sorting Samuel out!

The TV is on ... !

A rare photo of Aunty Tania!

Cool dude shades!

Mummy and Lew having a cuddle!

Millie in the cool dude shades!

Winding down ready for the long drive home.

We had a lovely time and Samuel and Lew did not want to leave!

Postpals - Samantha and Louis H

http://www.postpals.co.uk/pals/Samantha+H

Is there such a thing as a coincidence?

This week I got an email from Postpals. It said Samantha needed some extra TLC and so did her brother Lewis. It turned out her brother's name is spelled Louis. Even so .. a coincidence?

Well, it caught my eye.

Samantha is dying. In the past week she has gone from being a bright, happy, sparkly little girl just 5 years old, to a mere shadow.

I have been so moved by Samantha's story, and another coincidence? Samantha is exactly one year older than my gorgeous niece Millie whom we absolutely adore.

You may have had an email from me asking you to visit Samantha's Postpals page. And I will ask you again. Who knows how long Samantha and Louis have left together as brother and sister before Samantha's body will support her no longer?

So please please please visit Samantha's page. Send something - a postcard, a letter, a card, a gift - to Samantha and Louis. Show them you care. If you dont know what to say, say just that you are thinking of them. But at least let them know. A happy smiley face, a pretty pink princess, anything. Samantha is just 5 years old - her brother Louis is 6.

http://www.postpals.co.uk/pals/Samantha+H

Easter holidays - super busy!

What a busy Easter we have had! First of all, here is ANOTHER photograph of Lewis with Charlie!! Charlie likes to share his bed with Lewis sometimes ...!! One afternoon, Oliver and Maisie came to play. Maisie did a show while Lewis and Oliver watched!

We spent an afternoon at Karen's and Joe's and Lew loved being cuddled by Bethany ...

And by William.

Here's another photo of Charlie sharing his bed with Lew!!!

Samuel came back from spending some time with his dad in Twickenham. He was very happy, having spent some time with his nan and his sister Mollie as well. Here are Samuel and Mollie on the trampoline, a quick visit as Mollie was on her way home to her mum.

A big thank you to Helen Brierley for Samuel's lovely Easter card and chocolate bunny!

With the weather being so good over the holidays, Lewis got to spend some time in the pool. He was also very very excited when our house guests arrived for the weekend - Angela and Hannah from Wales! Here is Lewis in the pool with Hannah. He is soooo in love!

Here are Lewis, Samuel and Hannah enjoying the warm pool (which of course was donated very kindly by the Make A Wish Foundation and Heaven at Home!).

All warm after a lovely afternoon in the pool! Lewis is wearing his towelling jacket which Aunty Wendy, Uncle Andrew, George and Anna gave him as gift, all the way from Australia! Wonder woman Kath did some cutting and stitching so that now instead of going over Lew's head (it wouldnt fit!) it now opens at the front and wraps around. Lovely!

We had a very generous donation of two Chillows for Lewis and Samuel from Soothsoft Limited. A Chillow is a flat rectangle pillow sized cooling system! You place it under your pillow, or on your body where it is hot, and it cools you down! They are great, especially for Lewis who can get very very sweaty! You can find out more about Chillows at http://www.chillow.co.uk/. Thank you AGAIN to Helen Brierley (http://www.postpals.co.uk/) for Lewis' lovely Easter card and fantastic Easter masks! Here is Angela as a spring lamb, and Lewis as an Easter chick!

Another gorgeous day, so another afternoon in the pool! Lewis enjoying a cuddle with Angela who felt the cold even though everybody else was warming up in the sunshine!

Lewis and Hannah spent an afternoon with Kath, and Lew had some therapy on the trampoline!!

He loved being bounced, and he did lots of practising with his head holding, well done Lewis!

Time to relax a bit!

And do some colouring with Hannah.

After a hard afternoon working, time to relax!

A surprise visitor! Lewis' friend Luke came to deliver a lovely postcard from his holidays in Egypt!