Lewis Jeynes's Fan Box

Lewis Jeynes on Facebook

Tuesday, December 29, 2009

Post Christmas update

Lewis has been ill since arriving home from hospital on Christmas Eve, with a stomach bug causing sickness, etc. He has not been able to keep his milk down so has been on fluid replacement and water for the past few days with as much milk as we can manage to squeeze into him without it causing further sickness. He's very weak and not himself at all and his head holding and speech attempts are zero. It's very sad but we are at the moment definitely putting it down to weakness, although the suspension of his antibiotics due to his massively increased seizures cannot have helped at all. Its a very frustrating time .. I think Lewis needs a long holiday in a hot country - this cold weather is no good for him at all :(

Wednesday, December 23, 2009

Lewis in hospital again

Hello everybody, its almost Christmas ... Santa is preparing for his long journey around the world tomorrow ... and we are just hoping that Lewis will be at home for Santa's visit and not in hospital which is where he is now due to his horrid horrid seizures.
Please please please spare a thought (and a prayer if you can) for Lewis and all the children who will be spending Christmas in hospital this year or who will be ill on Christmas Day.
And please dont forget to visit www.postpals.co.uk. Today Lewis received a Christmas card from JAPAN ... how cool is that?!
Thanks to everybody, again, for all your support and kindness.

Saturday, December 12, 2009

December already!

Lewis is back home and alot better although still not 100%. He is off his 2nd antibiotic as we are concerned this may have caused the increased and uncontrollable seizures, we will introduce it slowly in a week or so and see what happens. The sad thing is that the new antibiotic seemed to be having a big effect on Lewis' abilities so hopefully we can find some way around any problems that arise so that Lew can continue to improve without having the horrid seizures which put him in hospital several times in the past month.
On Thursday Lewis was a duck in his school nativity. Lewis clearly enjoyed the experience greatly and it was wonderful for us to be able to go and see him and his school friends in the play.
You can see by the photos that Lewis was loving it!
Lewis back in the classroom after his nativity, giving Mummy a huge smile!
Lewis is receiving lots of cards and gifts in the post already from his massive worldwide fan club - all of this brought about by an amazing charity called Postpals (www.postpals.co.uk) so if you havent already signed up for a pal at Postpals, please do visit the website, find a child you'd like to become a pal for and get writing!
Lewis loves receiving post and always has huge grin when he sees letters and cards arriving with his name on!
Lewis is very excited about Father Christmas coming on December 24th. We have been lucky enough to meet Father Christmas several times already this month already and each time Lew has been mesmerised and listened very intently to what Father Christmas has had to say!
Lewis has promised to continue to be very good and to do his best as always.
Lewis even got a magical message from Father Christmas, all the way from The North Pole which you can watch by clicking here!
Here is Lewis with his Aunty Lucy and his cousins Katie and Emily.
With 2009 almost behind us, we'd like to take this opportunity to thank everybody who has been part of Lewis' life this year, it has been an amazing year with huge ups and downs. Without the support and interest of Lewis' huge network of family, friends and fans (Lewis even has his very own Facebook page!) we would not be where we are now with Lewis on antibiotics which are helping him to improve, even if its just in a small way at the moment. So thank you everybody and let us dare to hope for amazing things for Lewis in 2010 (and for England in the World Cup too!).

Friday, December 04, 2009

Lewis in hospital again

Lewis is back in DRI with greatly increased seizures which are not being controlled by his rescue medication. He is now being tried on phenytoin to break the cycle which we hope will work so we can get back home where all the Christmas lights and decorations are up, but which Lewis hasnt seen yet.

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!