2009 Update

It is still January and yet so much has happened already!

In September last year an article appeared in the Daily Mail about Lewis and we had a huge response. Many of you mentioned Lyme Disease but as we had been told Lewis had been tested for this, we did not pursue it further. But some of you did - and we are now looking forward to an appointment next month at the Nuffield Hospital in Newcastle to get Lewis a detailed test for Lyme in the hope that he does indeed have this (from an insect bite he got in Southern France in September 2005) and that with a long term course of strong antiobiotics, he can be cured.

Now we dont know if Lew has it yet, so we cant be too excited, but we are very very hopeful and we are immensely grateful to everyone who continued to tell us to get Lew tested for Lyme, even after we had put it aside as something he had been tested for and therefore didnt have.

This is, we are sure you can imagine, immense news. And we will of course let you know the outcome of our appointment on 9th February. The test results take several weeks to come back but we will let you know how the appointment went anyway and then we can all hope and pray for some good news from the results in a few weeks time.

Lewis has, so far, been incredibly well this winter for which we are truly grateful. Many people have commented on how well he is looking. We are so proud of him and of his big brother Samuel.

Some more good news for us is that Lewis, Samuel and I will be moving very soon to a bungalow - at the moment we are in a house with lots of stairs so this is going to be a great improvement for us. Also, the bungalow is much larger than this house so there will be plenty of room for all of Lewis equipment and we hope to have his sensory bedroom up and running very soon after we move in!

Thank you to everybody for all the lovely Christmas cards and gifts for both Samuel and Lewis. They both had a really lovely time.

We are still awaiting news of a date for Lewis' hip operation, although with the Lyme Disease testing happening soon, we are expecting that to be postponed until we know the results of the tests.

And finally, here are some lovely photographs of Lewis' Christmas. These two photos are from when Lewis visited the Bluebell Wood Childrens Hospice to deliver some gifts from The Lewis Jeynes Fund. We were able to purchase light effect sensory equipment for 3 of the childrens bedrooms at the hospice and we hope they will be enjoyed by all who stay there.

Here is Lewis with his cousins Katy and Emily.

Here is Lewis having a story with Granny.

Lewis received lots of gifts from Postpals - thank you all for the lovely presents for both Samuel and Lewis.

Lewis with Grandad!

Lewis with Daddy, Katy and Emily.