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Monday, June 16, 2008

Super amazing Lewis!

Well, what an exciting afternoon we have had! We were invited into Lewis' school this afternoon to watch Lew trialling a fantastic new computer! This computer is amazing! And Lewis is amazing too! The computer takes a picture of Lewis' eye and once it has that, it uses Lewis' eye movements to control what happens on the screen. Its hard to explain how amazing this is! Just imagine you cant move, you cant speak, you cant do anything but you understand everything. That is how Lewis is. And today, with this computer, he was able to do so much!!! He will have to learn how to use the computer effectively, but the school are already really pleased with how far he has come on in the past 3 weeks of the trial. So they have ordered the computer for Lewis to use at school on a regular basis! In time, Lewis will be able to use the computer as a communication aid. For now, he will be able to use it to make choices, to play educational games, and to learn. As he learns, he will be able to use the computer to speak! My job now is to take lots and lots of photographs around the house and outside, and of people who are important in Lewis' life, and of course photographs of our cats!!! These can be loaded onto the computer for Lewis to use. To fully appreciate the amazing opportunities available from this system, we would ideally like to be able to purchase the system for Lewis to use at home. The approximate cost of the system is £12,000. Its alot of money, but it is worth it - it will give Lewis a voice and the ability to learn and communicate and to enjoy by doing things himself! This computer will be like a key for Lewis - a key that is opening a door to a much more rewarding and fulfilling life! So we will be doing lots of fundraising to get together the money to buy Lewis this system for home. So please, if you can, come along to one of The Lewis Jeynes Fund events to help us reach our target! Here is more information about the system - http://www.smartboxat.com/mytobii.html

Sunday, June 08, 2008

Hot June!

Here is Samuel doing his art homework - a view from a window. He is very good at drawing! Doesnt get it from his mother! Here is Lewis asleep on his swing in the garden - along with Upsy Daisy and Makka Pakka!!! Look! On the lake at the moment its like a kindergarten! Lots of baby ducks and awww the cygnets!! Today Lewis went in the pool with Daddy. It was lovely to cool down on such a hot day!
Grandad came over to lunch and to play. Granny is on a yoga holiday in Majorca so she didnt make it!
Finished in the pool, and back in the shade chilling, lovely! As you can see, I didnt keep out of the sun today!
Lewis loves has his photo taken - can you tell?! ************************************************************************************
Please leave a message for Declan Kelly, Lewis' buddy, who is not very well at the moment - http://www.caringbridge.org/visit/declankelly

Sunday, June 01, 2008

Cameron's 5th Birthday Party!

Thank you very much indeed to Jayne and Phill for inviting us to Cameron's 5th Birthday Party! We had a lovely time, it was great to meet Cameron's family and friends, and to have a mad time in the ball pool! We hope you enjoy the photographs!

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!