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Tuesday, April 29, 2008

April!

What a busy month April has been! Lewis started back at school on the school bus and 3 days a week instead of just 2! Very exciting! Although by Friday lunchtime he is absolutely shattered!! Here is Lewis relaxing in his sensory room after a busy day at school! Here you can see Charlie sat in the road waiting for the school bus to arrive! Charlie loves Lewis! Lewis got a huge amount of post from Postpals posties this month! Thank you so much everybody!
Lewis got a lovely card and 3 little puppets - a pig, a badger and a cow! We have lots of fun with these!!! Thank you so much to Abbie for your lovely cards! We loved the spider poem! Here is a picture that Lewis made at school! Aunty Nicola and Uncle Lee gave Lewis some money so with this we bought these fabulous birds - a duck and an owl - with real sounds when you squeeze them! Lewis took the duck to school and the other children in his class loved to listen to the quack quack quacking! Thank you for Samuel's cool gift! He is at the age now where he loves his smelly stuff!!
Thank you so much Jessica B for the lovely sparkly book, Animal Opposites, and for your lovely letter. I did try to reply by email but it bounced back! It was really interesting to hear about you as we get post from posties, but often we dont know much about them, so your little list of useful info was really great! Wow Helen F, we loved reading about your cats, and seeing their photos! We especially liked the pictures of the cats in the box and in the basket! All the other pictures were really interesting too! We will have to decide which side to stick on the wall and which side will be hidden behind! Thank you again to Karen Sami for the lovely card! We have lots of cards from you that are in Lewis' day room as we like to look at them so much! Granny and Grandad have gone on a long holiday (for 6 weeks!) and so they have been sending Lewis lots of postcards, from South Africa and Australia! Lewis got this lovely bright card from Leona - thank you so much Leona! We know you've been sad recently, so want to send you some special love and kisses! xxx
Here is a photograph of scrumptious Ethan Crossland! Ethan is the new baby brother of Matthew Crossland who is a friend of Lew's from school! Here is Lewis with his biggest fan Heidi in her lovely Peppa Pig t-shirt. Also Phoebe was showing off her new cool shades! And here is Heidi with her cool shades! Her and Lew look like an old married couple sat in front of the TV! So romantic! Here is Lew with some more postcards from Granny and Grandad! Thank you so much Nathan and Anna and Andy for this fabulous CD which has songs on it that have Lewis' name on!
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A HUGE LOAD OF LOVE AND KISSES TO DECLAN KELLY who is not well at the moment. Declan, we think about you EVERY DAY, and we miss you loads! We hope you are well enough very soon to come home from the hospice so Mummy can put you on the webcam for us to blow kisses at! (http://www.declan-kelly.com/)
Here is Declan having a kiss from his big bro Kyle!

Friday, April 18, 2008

Our visit to Twickenham

After Easter we went to visit our family in Twickenham. (Declan may recognise this shirt!).
Millie dressed as a nurse!
Millie as Batman!!
Lew having a gaze at Aunty Tania!
Lew enjoying relaxing on the garden swing.
Millie followed Samuel everywhere!
Me and gorgeous Millie!
Samuel and Daisy together having a photo - can you tell they dont want a photo?! We have a photograph of them both in the same place when they were 2 and 1 year old! Awww
Lew enjoying chilling with Daisy!
Millie sorting Samuel out!
The TV is on ... !
A rare photo of Aunty Tania!
Cool dude shades!
Mummy and Lew having a cuddle!
Millie in the cool dude shades!
Winding down ready for the long drive home.
We had a lovely time and Samuel and Lew did not want to leave!

Monday, April 07, 2008

Postpals - Samantha and Louis H

Is there such a thing as a coincidence?
This week I got an email from Postpals. It said Samantha needed some extra TLC and so did her brother Lewis. It turned out her brother's name is spelled Louis. Even so .. a coincidence?
Well, it caught my eye.
Samantha is dying. In the past week she has gone from being a bright, happy, sparkly little girl just 5 years old, to a mere shadow.
I have been so moved by Samantha's story, and another coincidence? Samantha is exactly one year older than my gorgeous niece Millie whom we absolutely adore.
You may have had an email from me asking you to visit Samantha's Postpals page. And I will ask you again. Who knows how long Samantha and Louis have left together as brother and sister before Samantha's body will support her no longer?
So please please please visit Samantha's page. Send something - a postcard, a letter, a card, a gift - to Samantha and Louis. Show them you care. If you dont know what to say, say just that you are thinking of them. But at least let them know. A happy smiley face, a pretty pink princess, anything. Samantha is just 5 years old - her brother Louis is 6.

Tuesday, April 01, 2008

Easter holidays - super busy!

What a busy Easter we have had! First of all, here is ANOTHER photograph of Lewis with Charlie!! Charlie likes to share his bed with Lewis sometimes ...!! One afternoon, Oliver and Maisie came to play. Maisie did a show while Lewis and Oliver watched!
We spent an afternoon at Karen's and Joe's and Lew loved being cuddled by Bethany ...
And by William.
Here's another photo of Charlie sharing his bed with Lew!!!
Samuel came back from spending some time with his dad in Twickenham. He was very happy, having spent some time with his nan and his sister Mollie as well. Here are Samuel and Mollie on the trampoline, a quick visit as Mollie was on her way home to her mum.
A big thank you to Helen Brierley for Samuel's lovely Easter card and chocolate bunny!
With the weather being so good over the holidays, Lewis got to spend some time in the pool. He was also very very excited when our house guests arrived for the weekend - Angela and Hannah from Wales! Here is Lewis in the pool with Hannah. He is soooo in love!
Here are Lewis, Samuel and Hannah enjoying the warm pool (which of course was donated very kindly by the Make A Wish Foundation and Heaven at Home!).
All warm after a lovely afternoon in the pool! Lewis is wearing his towelling jacket which Aunty Wendy, Uncle Andrew, George and Anna gave him as gift, all the way from Australia! Wonder woman Kath did some cutting and stitching so that now instead of going over Lew's head (it wouldnt fit!) it now opens at the front and wraps around. Lovely!
We had a very generous donation of two Chillows for Lewis and Samuel from Soothsoft Limited. A Chillow is a flat rectangle pillow sized cooling system! You place it under your pillow, or on your body where it is hot, and it cools you down! They are great, especially for Lewis who can get very very sweaty! You can find out more about Chillows at http://www.chillow.co.uk/. Thank you AGAIN to Helen Brierley (http://www.postpals.co.uk/) for Lewis' lovely Easter card and fantastic Easter masks! Here is Angela as a spring lamb, and Lewis as an Easter chick!
Another gorgeous day, so another afternoon in the pool! Lewis enjoying a cuddle with Angela who felt the cold even though everybody else was warming up in the sunshine!
Lewis and Hannah spent an afternoon with Kath, and Lew had some therapy on the trampoline!!
He loved being bounced, and he did lots of practising with his head holding, well done Lewis!
Time to relax a bit!
And do some colouring with Hannah.
After a hard afternoon working, time to relax!
A surprise visitor! Lewis' friend Luke came to deliver a lovely postcard from his holidays in Egypt!

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!