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Sunday, January 28, 2007

Sundays sundays sundays

Well, had a great day yesterday! We went into town on Saturday morning for a look around the shops and then we went to the theatre to see The Lion, The Witch and The Wardrobe. Lew had such a great time, he loved it! And we met some of our friends who we havent seen for ages! Karen was there with William and Bethany and Emily and Elisha! Lewis was so excited to see them and we had a lovely chat and a cuddle during the interval! Lewis particularly liked the special light effects during the performance, the sparkly lights and beams and of course the wonderful sounds! He could see the stage, and enjoyed that as well, but it really was the sensory parts that got to him the most! After the theatre we went to Tesco for some shopping. Lew does love to go shopping as he sees lots of people to smile at! While at Tesco, I bought a jar of stage 1 babyfood to try Lewis and he LOVED it! We didnt give him the whole jar, just a few spoonfuls, but he so enjoyed the sensation of eating and he managed the swallowing very well! At 7pm he went to bed, sooooo tired after a very busy day! After Lew was in bed, I popped up to Olga's to drop off a balloon and a card for Ilya to say 'get well soon' after his tonsil surgery. I had intended to leave the balloon and card on the doorstep as a surprise, but they caught me so I went in for a cup of tea! Later, I went across to Denise and Jon's for a lovely chinese take away and lots of chatting. It was very very relaxing! Just what we needed! This morning we got up at 10am ... these lie ins are getting to be a habit! Best not lay in tomorrow as we have playgroup at DRI! We watched some TV and Lew had a bath. Then James came home from football and we went to B&Q to buy a fire surround for the fire we bought 3 years ago (!) and also a light for the soon to be built conservatory! We've had a very very lazy afternoon ... just sat watching TV in the warm ... its soooooo cold outside! Lewis received a lovely present from a postpal yesterday - a bright orange spinner thing that hangs from the ceiling and twirls around! It goes brilliantly with his blacklight as the blacklight makes the orange glow very bright! Lewis has also received several lovely emails - thank you very much for our emails from Joseph, Ele and family (Joseph has VACTERL association) and also thank you from Miharu, Michuru and Mirai and their mum Izumi who are in Mexico! Thank you also to Laura (lawse) who we are hoping will be able to come and visit us some time next month! And a quick date for your diaries for those of you who know us personally and live close by: Lewis' 3rd birthday party, Wednesday 28th February 2007, 4.30pm to 6.30pm - puppet show and entertainment Please mums and dads bring a contribution to the buffet (just let me know beforehand if you are bringing sweet or savoury) Also, as we are saving for sensory equipment for Lewis' new room, please no presents, but if you would like to contribute towards our fund for sensory equipment, that will be very gratefully received!

Friday, January 26, 2007

Baby massage!

Hello! Well yesterday was a very very busy day! We had a bit of a lie in which was lovely! Then we went to hospital for our first appointment which was with Dr Mordekar. It was a very positive meeting, and we laughed alot. Dr Mordekar was telling us that people who know Lewis (who work in the NHS) will see Dr Mordekar and he knows what they will say ... 'have you found out what is wrong with Lewis?' and he says before they even ask 'NOO! I still dont know what is wrong with Lewis!'!! More test results came back and they are all NORMAL!!! Dr Mordekar said its great that the results are normal but if the people who are reporting the results to him could see Lewis, they would see that Lewis is not normal!! He also mentioned that we should be on Professor Surtees' cancellation list at GOSH so fingers crossed we can get in before April. Then we went to the Renault garage and ordered a new car! Now dont think that because we ordered a new car that we must have won the lottery!!! From 28th February Lewis will be entitled to Disability Living Allowance - mobility component. If you dont already know, I'll explain. With the mobility component, you can, instead of having the benefit as money each month, have a new car for three years. So the benefit is paid direct to a charity called Motability who provide the car, pay the insurance and tax, and maintain the vehicle, and we get a reliable (hopefully!) brand new car! So we ordered a Renault grand scenic in eclipse (the colour) which is a kind of greyish black colour. It should be ready for us to collect mid March. So thats exciting! We had a visit from Roz and a nice cup of tea at home before going back to the hospital for our other two appointments! First we saw Dr Ahmad (Lewis' paediatric consultant) and then we saw Zoe (Lewis' dietician). Both of those meetings went really well, and again we felt very positive and upbeat. We also managed to pop in and visit Ilya who was looking very well to say he'd just had his tonsils out! I do hope Olga managed to sleep well last night in the hospital and that her and Ilya can come home today for some rest!! We arrived home quite late (5.40pm) and Lewis was soooo tired from his busy day that he went straight to bed!!! Margaret from SENCO popped in briefly to lend us a mathmos projector lamp which is fantastic. I put it on for Lewis this morning on the ceiling above the bed and he was mesmerised! So thank you so much AGAIN Margaret! This morning we had a mad rush to get to baby massage for 10.30am! And it was the best! Lew was, as expected, the oldest child there. They were mostly teensy babies! But he loved it anyway and it was great for me and him to do something together like that. We both really enjoyed it. Lew loved looking round at the babies and we also met a lady and her little girl who we had seen many times at Ward 31 when we were staying in. She had stayed in alot longer than us, her little girl is not very well at all, but thankfully she is out of hospital at the moment and so we were able to have a nice chat. As her English is not very good, she is Chinese, our conversation was difficult, but we managed! But any assistance with the Chinese language would come in very handy for next week! Also, she showed me some traditional Chinese massage for Lewis which she does on her own little girl. Like Lewis, her little girl has a silk tube down her nose, but unlike Lewis, her tube does go down to her bowel which she had to go to Sheffield for. We are looking forward to seeing her again next week. Lew and I came home so I could have some lunch while Lew watched some Pocoyo that I had recorded for him, and we are shortly going to visit Denise, Oliver and Maisie! Thank crunchie its Friday! Lewis and I are going to the theatre tomorrow to see The Lion, The Witch and The Wardrobe! PS. Thank you Mel for your card! ... again! x

Thursday, January 25, 2007

Photographs, conservatories, tonsils and lie ins

Hello! morning! Well yesterday was great! Lew was very very clingy, but he still managed to have a very long cuddle with granny which I think pleased granny an awful lot! In the morning Teresa came over and helped give Lew a bath and then watched him (turn blue twice!) while I got a shower!! Poor Teresa had not seen one of Lewis' reflex anoxic seizures before and had quite a shock as he did it to her twice!!! Later on granny and grandad came and Lew enjoyed seeing them and while I took Samuel to his year 10/11 options meeting at school, granny had a cuddle with Lew and both benefited hugely from it! Later, Kath came to do some physio which Lew didnt like quite so much as cuddles with granny, but needs must! Then Luke and Georgia and Ilya arrived and had a play. After Kath had finished 'torturing' Lew (!!) we popped up to Olga's for a cup of tea and Lew was very very vocal and excited to be sat with the big children and it was a wonderful wonderful pleasure to watch him being so happy! I do think that granny's tapping and Kath's physio helped him enjoy himself alot more, but I dont think Lew would agree about the physio part!! So conservatories ... well we now have, instead of a patio/terrace, a trench ... well we did have trench ... right this second it is being filled with cement!! And in the next 1-2 weeks it will transform .. TA DAAAAAAAAAA .. into a conservatory! Whohoooo! Style-a-Home is owned by James friend who has very kindly done us a VERY good deal and so to increase our downstairs space (an absolute essential now for Lewis) we are having a conservatory ... I will I WILL remember to put some photos on I promise (someone please remind me .. Yolanda thanks for reminding me once but I need it stamped on my head!). Now enough about us for now ... except to say today we have THREE appointments at DRI! With Dr Mordekar, then with the dietician, then with Dr Ahmad ... so we're going to be kind of busy today! But please think (and pray if you do) for Ilya who today is having his tonsils out at DRI ... I am sure they will do a wonderful job of looking after him, but even so its just not nice having to go into hospital for an operation, do they still give lots of ice cream for tonsils??! So a busy day, will catch up later! Oh forgot lie ins ... this morning I changed Lew's nappy while he was still asleep so I could have a guilt-free lie in .. you see he is soaking his nappies overnight and hence his pyjamas and sheets and bed .... so brainwave .... I changed his nappy before it soaked through, at around 7 this morning, and then went back to bed, perchance to dream!

Wednesday, January 24, 2007

Good morning!

Hello! Had the most wonderful day yesterday. We went to play group at the hospital and Lew had the best time, singing and sticking and playing on the touch screen computer. Rachel and Jill are just the best! They adore the children they look after and it totally shows because the children always have the best time. Lew has taken quite a shine to Linda too! As usual, we managed to meet lots of Lews other friends from the hospital, particularly the physio and OT teams! Then we went straight across to musical minis at the community centre and met Denise, Maisie and Oliver there and also Barbara and her grandchildren Ellie and Luke and her daughter Kate. Lew loved musical minis! We sang lots of songs and played with musical instruments and Lew LOVED the hokey cokey as he really does laugh and chuckle when he is 'whooshed' towards someone (in his giraffe chair) - he finds it so hysterical! And of course with the hokey cokey you do all zoom into the middle and so he thought that was just great! Must remember to do the hokey cokey at his birthday party!! Then we went to the yorkshire outlet (sorry .. Lakeside Village ha ha posh name) with Denise, Maisie and Oliver for a nice cup of coffee in the Thorntons Cafe and then we watched Maisie and Oliver play in the soft play area and Lew loved seeing them play and also smiling at other children who were there. We came home around 5pm and Lew was sooooo tired after his long but very happy day! Jodie and Nicola arrived for our chinese girls night in and Lew was surprised to see them out of nurses uniforms!!! Then it was off to bed for Lew - head hit the pillow and he was almost straight off! Then Samuel and I, Jodie and Nicola enjoyed our chinese while James ate .... what did James eat? Then we watched trashy TV and I bored the pants off Nicola and Jodie looking at photographs ... they did say 'WE LOOOOVE LOOKING AT PHOTOS ...' - I think they might have now regretted that comment!!! It was a late night, I think we said goodbye around 11.30pm but it was so great - a totally wonderful day for all. And now its Wednesday but more about today when today is finished lol! xx

Monday, January 22, 2007

Not happy

Spoke to Great Ormond Street Hospital today ... the earliest appointment they will be able to offer us is April and we cant confirm that until it has gone through their allocations process which can take a week or two .. so not the best news. Still, at least we can plan things for the next couple of months without having to worry we'd end up dropping everything for GOSH. Lewis has had such a good day today, he has been smiling and happy. I think he must have had a cold and sore throat (which I have now got!) and so now he's feeling better. Thank you to Teresa and Luke for coming over this morning to watch Lew while I showered! Thank you Denise for putting up with us all afternoon, moaning and tears, and for offering to come over at 8am tomorrow for the shower patrol! And Gill, it was so lovely to see you. Tracie (butterflykiss) thank you for your email, sorry I havent replied yet, just havent got my head round it yet!

Sunday, January 21, 2007

Someone please remind me about photos!

Hello! Still havent uploaded new photos! But have managed to do thank yous to postpals who sent Lewis and Samuel cards and presents over christmas and these first 3 weeks of January. Just got to do thank yous to everybody else who sent Lewis and Samuel presents for Christmas! But with having been in hospital from 29th December to 15th January its been a bit difficult!!! Well, we have something to look forward to! Our conservatory is being started on 29th January! Exciting! So if you are in the area that week (does it take longer than a week?) then please please see if me and Lew are in as we may be going completely bonkers making cups of tea for builders!!! Lew pulled his tube out again today!!! So we had to phone the paediatric district nurse to come out and put it back in! Lewis DOES NOT like having that done one little tiny bit!!! If you havent already, please do take a look at www.postpals.co.uk where you will find details of children who, like Lewis, are struggling with life threatening, life limiting, illnesses or conditions who would welcome emails, cards, postcards, letters, gifts to brighten their days. Even a quick email just to say hello and how are you will bring a smile to their face so please please if you get chance, take a look and give a pal a smile!

Saturday, January 20, 2007

Photographs - a reminder!

Hello again! I am soooo tired out! Have sorted out loads of stuff from the garage and made piles for charity shop (James took some to make some space!) and for hospital (toys) and for friends who have children. Lew cannot play with most of his toys anymore as they are not suitable now he has no mobility at all or use of his hands. He loves books and he loves to look at things so we have ordered this fantastic projector called laser cosmos which we hope will give him some enjoyment! We approached social services recently about assistance with converting our garage into a downstairs bedroom/bath for Lewis and they have arranged for the plans to be drawn up and they also arrange for the certified builders (certified to do disabled conversions), project manage, and provide the bath, bed, ceiling track, hoist, etc, which is fantastic news!!! So we are saving up our pennies for Lewis so that we can get him some sensory equipment in his new room when it is finished. We have also arranged with our bank to borrow some money to add a conservatory onto the back of our house which we will use as a playroom for Samuel and Lewis. We would like to get Samuel and Lewis in the same place at the same time so we will move all Samuel's computer equipment, xbox, ps2, etc downstairs, and have some of Lewis' toys in there as well (and a TV cos he lurvs TV!) and so even though they are not playing together, they are together and the aim is increased interaction as Lewis totally adores his big brother! Yesterday I had the most wonderful massage which was arranged through a contact at Lewis' hospital. It was total bliss and James is booked in to have one tomorrow! The guy who is doing it, Ian, is re-training as a sports masseur and he needs people to practice on so he has practiced on me and will practice on James tomoz! Yummmm! Also yesterday, Aunty Wendy arrived with us and cooked us the most scrumptious chilli con carne - it is a Pettifer speciality and we all had second helpings (except Wendy which is a good job as there was none left!!). Tonight Aunty Wendy is cooking us good old bangers and mash, scrummy! Elastic waistbands required! Today she has taken Samuel into town to do some shopping which Samuel is very chuffed about! He really loves Wendy (although he is very shy to show it!) so he'll be having the best time, I am sure. James is out tonight, well this afternoon (!), with Richard and Steve. They are on orders to be back by 7pm (Van and Teresa orders I think!) but we'll see! Get those three together and we'll be lucky to see them before midnight! Ooooh, we are going to see the Wiggles in June at Manchester with Denise, Oliver and Maisie! Soooo excited about that! But before then, we are going to the civic theatre (Lew and I, next Saturday) to see The Lion, the Witch and the Wardrobe! On Tuesday, Nicola and Jodie (nurses from Lewis' hospital who have become friends) are coming over for a girlie night in and we are having chinese take away yay!!! Lewis is currently sitting on daddy's lap watching The Shiny Show ... but if Daddy had his way, he'd be watching the football!!! Well, thats all from us for today! But please remember to pray (or think about) Laura who's nan is very poorly - we hope her final time here is as kind and peaceful as possible. And for Yolanda and Stephen, Naomi and Joshua and gorgeous smorgeous Joel who did indeed have pneumonia and is now fighting it off - keep strong Joel! Oh and a final note for Lewis' Doncaster granny and grandad - thank you so much for being such super grandparents, and we are looking forward to seeing you soon, especially grandad cos we havent seen you for a while!!! And for Grandad Skinny who has gone back to London, Lewis absolutely adores you!

Friday, January 19, 2007

Bit late, but here's an update!

Hello everybody! Thank you for your comments, and sorry its been so long since our last update! Well, we came out of hospital on Friday 12th on home leave to see how we managed over the weekend, and then we had to go back on Monday for the doctors round to be formally discharged. So we came out on Monday morning and then we were back Monday evening!!! Lew was vomiting so we were a bit concerned! We stayed in Monday night and it was one of the most depressing nights/days I've had for a while. The room was dark and dingy and I had really had enough of being in hospital so by Tuesday I was really struggling. Lew was, of course, quite happy to watch hospital TV! We escaped on Tuesday evening and Lew seemed to have improved and (fingers crossed) no sickness yet. On Tuesday we went to the special seating clinic to see about a new pushchair/wheelchair for Lewis and a fab new chair has been ordered which will be ready in 3 weeks. On Wednesday we went to nursery to spend the day with Lewis' friends which he enjoyed so much, and so did I as it was sausage casserole and mash for lunch yummmmmmmm! (For me, not Lew, poor Lew was very confused at not being fed like the other children). Yesterday we spent a lovely day in town with Denise, Maisie and Oliver and got some marvellous bargains in Debenhams!!! We had a delicious lunch out and then had a mental time trying to get home as the strong winds had closed off all the roads!!! Today we are waiting for lots of visits! 1-1.30pm Lynda coming from Bluebell Wood 2pm Health Visitor coming 3.30pm conservatory quote man coming 4.30pm Ian massage man coming to give me a massage this evening - James sister coming to cook us a meal yummmmm yummmmm! Also ... at some point we are expecting the pdn (paediatric district nurse) to come as today Lewis decided to pull his tube half way out of his nose arrgghhhh! Please send your love to our very good friends Yolanda and Stephen and Naomi and Joshua and of course little Joel ... Joel is in hospital at the moment as they are concerned that he may have pneumonia. Also please think about Laura's nan who is poorly. Then tomorrow I've got to sort out all the stuff in the garage!

Friday, January 12, 2007

Home again!

Hello! Well we came home this afternoon. It was very scary, soooo much responsibility, but here we are, at home! Lewis was sooooo tired today! He was up at 5.30am and didnt manage a nap today so no wonder he was so ready for bed! He had his old tube taken out and his new 'silk' tube put in today (he was not happy about that, but its done and dusted now!). He's upstairs now in bed, all plugged in to his 'infinity pump' with his milk going down his tube to his tummy to fill him up! Imagine that ... eat while you sleep lol! I have had the most relaxing bath and now I am also very very ready for bed!! Sooo tired! We are on 'home leave' from hospital so that we can go straight back to ward 31 at any time over the weekend if we are worried. All being well, we have to go back to hospital for ward rounds on Monday morning and then we will be discharged. So fingers crossed the weekend will go well! I did have a few hiccups with the new tube as the syringes I was using for Lew's medicines dont fit it so I had to go and find syringes that fit! But I think I'm all sorted now ... fingers crossed! I dont think we've got anything planned tomorrow - just relaxing hopefully! Although my dad (who is visiting from London) wants to go and buy a coat cos he's so cold. It is soooo windy here at the moment, I think Lew and I were better off in hospital this last 2 weeks out of this horrid horrid wind! Thank you to everybody for our lovely cards and presents and beautiful flowers (I had the most beautiful roses from Angela who visited all the way from Cardiff!!!). Lewis has a great selection of cuddly toys to put on the end of his bed. I've added some photographs from our recent stay in hospital so please do check them out!

Tuesday, January 09, 2007

stir crazy!!!!

hello again what a fab day we went down to playgroup at 10am and lew had the best time - singing and sticking and playing on the computer. he tried so hard to press the screen - well done lew!! we came back from group just after 12 and lew fell straight to sleep!!! granny came to visit, then olga, and lew lurved flirting with her!!! grandad came later and so i took advantage and went for a stroll around the hospital. lew had a temp spike late afternoon which was controlled with ibuprofen and paracetamol. later daddy and samuel came. i have been practising doing lews tube feeding and i feel very confident about that. i would like to send hugs to joel who has been frightening his mum and dad again with his asthma - we hope you are all ok. xxxxxxxx also lily and tom (and beth) - gentle hugs - you know why xxxx

Monday, January 08, 2007

monday

hello, what a good day we got up early as lew had his eye test at 9.38am precisely!! all was fine with that - no change since the last one several months ago we then went to early skills group and lew loved it!!! we met 2 new children and their families and enjoyed singing, activities - sticking pasta and colouring pictures. lew had a go on the touch screen computer and then we went to the sensory room for a bit. james spoke to lews neurologist today and lews mri from 20th december was completely normal!! he is referring us asap to professor sertes (sp) at great ormond street i was very relieved to hear the mri was clear when i brought lew back upstairs to be reconnected to his feed he went straight to sleep! we had a very productive visit from bluebell wood and are feeling very positive about what they can offer thankyou to teresa, van and olga for visiting - thank you van for the flowers and olga thank you for lewis books thankyou barbara for your visit and for lews scrumptious mickey mouse and my flowers! thank you to granny and grandad again for coming to see lew we got a card from mel - thank you mel!! rachel, nick, heidi and phoebe - thankyou for your email - keep in touch x

chapel

hello had a good day again lew came off his feed at 10.45am so we zapped down to the hospital chapel for the 11am service there was just one other lady there so it was just us 3 and the vicar lady lew fell asleep in his chair!! he was given a special blessing at 12.30 we had a visit from katie from bluebell wood hospice about the help and support they can provide - she was very lovely and helpful we went down to the sensory room with yolanda and lew enjoyed it very much

Saturday, January 06, 2007

good day

fingers crossed been a good day today lew had a bath which he quite enjoyed then we went down to the sensory room and he loved it!! came upstairs to a posh supersoft mattress and lew went straight to sleep!! i had a go at giving lews meds through his tubes which wasnt too traumatic! getting an early night as we are very tired!! laura - please keep in touch re your email x

Friday, January 05, 2007

hello from dri

sorry about no capitals, etc but typing on a screen is quite difficult!! we have had a good day today - lew is still tolerating his ng feeds, we are up to 50ml per hour now we have had lots of visitors today - teresa, miss tina (with a card and a bear from lews friends in teddies), gill, paul (pat has a cold - hope you feel better soon) and finally munmun, paulash and livia. lewis had a great time watching samuel and livia play today we visited the sensory room (snoozarama) but as lew was tired he didnt enjoy it as much as anticipated ... however as it closely resembled a white padded cell, i felt right at home!!!! seriously it is the most amazing room

Thursday, January 04, 2007

update

lew did ok overnight with his ng tube he has slept alot today, he is so tired our neurologist is away until monday so we will be here until at least then thankyou aunty wendy and co for the lovely card xxx thankyou jodie for the postman pat balloon and teddy thank you yolanda for the noddy books and naughty chocolates!!! thank you miss charlie for the cheeky monkey thank you james / daddy for being the best and for the lovely flowers thank you to all who have managed to visit us - it means so much to us and brightens our days xx thank you teresa for the wine!!!!! thank you to those who have sent emails and texts - we appreciate your kind thoughts and wishes bath booked in at 3pm for lew ... with the nurses ... i bet you men are jealous!!!!

Wednesday, January 03, 2007

struggling

really struggling tonight, watching our baby lose more and more abilities now all he can do is move his head slightly left and right when he is supported we love him so much and he is being taken from right in front of us and we cant do a thing to stop his decline please God help our little boy, please make him better, please dont take him away from us

Monday, January 01, 2007

in hossy

hello just wanted to say if u wouldlike to send card to brighten up lews room we are in ward 31 at dri xxxx

More from sister Nicola....

Happy New Year to everyone. Further to the last update, Samantha has asked me to post another as things are currently. She says: "We have made it into 2007! Lew is still in hospital, on IV fluids as he vomited up his feeding tube! Got to see some specialists tomorrow about feeding and will be here for a few more days at least"

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!