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Sunday, March 25, 2007

Weekend

Saturday Lewis and I got up quite late!!! We were meant to be at Jill's for around 10am, but we didnt get up until just before 10am!! And I had to do my exercises (getting serious now!) and Lew had to have a bath!! So we didnt get there until well after 11am and I'm not used to Saturday traffic!! Plus I was worried about getting lost again!! But I didnt get lost this time phew! We were greeted outside Jill's house by the hugest black dog! We discovered his name is Monty Dog and he is soooo gorgeous. Well perhaps his name is just Monty, not sure, but we'll stick with Monty Dog anyway! Then we met Johnson (again) and of course Jill and went in for a cup of tea. Monty / Dog loved giving Lewis gentle kisses and Lew loved receiving them!!! (See photos). He enjoyed watching Johnson play with all his toys, and he was very entertaining! Soon Johnson's Dad / Jill's husband Alan returned from work and he and Johnson were messing about on the sofa doing hand stands and tickling and stuff and Lew found this hysterical! Lew also managed to squeeze in an hour's sleep! At around 2.30pm we came home and Lew was very excited to see his daddy! We watched a film on TV (I think) then Daddy went out to watch the England/Israel match in town. Me and Lew chilled out for an hour before he went to bed. Munmun arrived around 7.30pm with some crisps (yummm!) and Olga arrived around 8.15pm. We had some wine (not mun) and some maltesers!!! And lots and lots and LOTS of gossip!!!

At 10.30pm James came home. He spent several moments trying to open the front door (which was unlocked) with his office keys. He then came in complete with PIZZA completely and terribly drunk and frightened Olga and Mun away!!! I videoed him talking gibberish for 4.5 minutes and then I went to bed! The clocks went forward one hour - hope you all remembered! So I got up at ... MIDDAY!!!!! We went to Bawtry garden centre, then went to Tesco, then went round to Steve and Van's house for a walk around the lake, but it was tooooooooo cold so me and Lew stayed with Van and Jay and Nicky while Steve, James and Richard went round the lake. Teresa was meant to come round with Luke, but Luke wanted to stay at home and play on the sega x-box (a hybrid that Richard made up!) and even though Teresa had said he couldnt go on it, he wouldnt budge so poor Teresa had to stay at home and her cup of tea went cold! After the men had come back from their walk, Richard went home to console Teresa and the rest of us went to Ma Hubbards (between Bawtry and Austerfield) for tea. It was great! Well it was great for all of us, but not for James and his dieting! But he did try. He had soup to start then salmon and potatoes for his dinner. I had pate, then lasagne and chips, then lumpy bumpy toffee pudding!! Oooops - must remember my exercise tomorrow! It was a lovely evening, excellent company, the children were wonderful, very inquisitive and interested in everything which was really nice, and Lew loved to watch them playing. He particulary enjoyed Jay's spiky haired penguin creature that his ice cream came in! So now Lew is in bed (as I am sure Jay and Nicky are as they were all exhausted!) and I am off for my bath. It has in general been a lovely day and I am feeling much recovered from my recent miserable-ness. My sincere apologies to all my friends who have texted me who I have not replied to this last 2-3 days. I have just been so down that I havent felt able to text anything nice, and as some rabbit once said 'if you cant say nothing nice, dont say nothing at all'!!!

3 comments:

Anonymous said...

Glad you have had a couple of good days! Sounds like you have gotten out quite a lot and that Lew has been having a good time! Great that James' diet is going so well... good for him! And well done you for exercising! We aren't heading anywhere over Easter... if I don't see you before then we will HAVE to arrange a date! Finally! Love as always to you all,
Yolanda

Anonymous said...

Hi Sam!
Glad you had a good weekend and thank you for the lovely evening on Saturday.
Just looked at the calendar - it`s exactly 5 weeks till Lew`s appointment in London!
Will see you around!
Olga

Anonymous said...

its good to hear that you have had a few good days after your miserable days. awwwwww love the pic of Lewis with the big black dog! lol its so sweet.

oh no, i forgot the clocks went forward. thanks for reminding me! oooops

Take care
Sian XxxX

Take a look at other videos of Lewis at YouTube

The Lewis Jeynes Fund

The Lewis Jeynes Fund was established to provide care and support to Lewis Jeynes and the success of the Fund has meant that we have also been able to purchase specialist equipment for other children with undiagnosed neurologically degenerative conditions in Doncaster and the UK.

Lewis and his friends around the UK all suffer from acute and undiagnosed life limiting or terminal conditions and very often specialist equipment is difficult to afford due to the changed circumstances at home. This is where the Fund can provide vital assistance to those in need. All of the proceeds of the Fund go straight towards helping Lewis, and other children and families like him and us.

Contributions should be sent to The Lewis Jeynes Fund, 15 Kentmere Drive, Doncaster, DN4 5FL or by BACS to Nat West Bank, “The Lewis Jeynes Fund” Account No. 35662565 Sort Code 60 06 39. You can also go into your local Nat West Bank and pay into the Fund over the counter.

22nd October 2005

22nd October 2005
Lewis checking our supermarket receipt!

April 2006

April 2006
Colchester Zoo, just before Lew stopped walking

August 2006

August 2006
Lovely ice cream yummmm!

September 2006

September 2006
Ward 30 - just after Lews first major seizure

October 2006

October 2006
Doncaster childrens assessment unit - 'm on the phone!

October 2006

October 2006
In DRI childrens assessment unit blowing up rubber gloves!

30th November 2006

30th November 2006
Ward 31 - Blowing kisses to Daddy! Mwah!

30 November 2006

30 November 2006
Ward 31 - Playing cars!

1st December 2006

1st December 2006
Frankie & Benny's - just discovering cant eat very well

7th December 2006

7th December 2006
My arm doesnt work but my tongue still does!

7th December 2006

7th December 2006
Playing with Evie and mummy on the sofa

7th December 2006

7th December 2006
Lew in the bath with Evie providing entertainment!

7th December 2006

7th December 2006
At Homestart Christmas Party, waiting for Father Christmas with Aunty Nicola and Evie!

December 2006

December 2006
Playing with Miss Jodie at Building Blocks Nursery

i love you much (most beautiful darling) by e.e.cummings

i love you much (most beautiful darling), more than anyone on the earth and i like you better than everything in the sky -sunlight and singing welcome your coming although winter may be everywhere with such a silence and such a darkness, no one can quite begin to guess (except my life) the true time of year - and if what calls itself a world should have the luck to hear such singing (or glimpse such sunlight as will leap higher than high through gayer than gayest someone's heart at your each nearness) everyone certainly would (my most beautiful darling) believe in nothing but love

Lewis' cousin Millie

Lewis' cousin Millie
January 2007

Lewis and his cousin Evie

Lewis and his cousin Evie
February 2007

Lew and his cousin Anna

Lew and his cousin Anna
February 2007

12th December 2006

12th December 2006
DRI Christmas Party - meeting Father Christmas!

30th December 2006

30th December 2006
Lew in Ward 31, not very well

5th January 2007

5th January 2007
Ward 31 - playing with my lovely balloons!